WEBVTT 1 00:00:10.771 --> 00:00:13.251 - So I want to just take a moment to welcome everyone 2 00:00:13.251 --> 00:00:17.151 to our public lecture series for social work 3 00:00:17.151 --> 00:00:22.151 and to the Brown Foundation research lecture in particular. 4 00:00:22.351 --> 00:00:25.151 My name is Maria Torres and I'm a new faculty member 5 00:00:25.151 --> 00:00:26.951 at the School of Social Work. 6 00:00:26.951 --> 00:00:28.911 And I'll be starting-- 7 00:00:28.911 --> 00:00:30.351 (applause) 8 00:00:30.351 --> 00:00:31.471 (feedback) 9 00:00:31.471 --> 00:00:32.871 (laughter) 10 00:00:32.871 --> 00:00:33.771 Sorry! 11 00:00:33.771 --> 00:00:34.871 - [Voiceover] It was celebrating. 12 00:00:34.871 --> 00:00:36.471 - I know, that's some celebration. 13 00:00:36.471 --> 00:00:38.551 And it's my real privilege and an honor 14 00:00:38.551 --> 00:00:42.071 to get to introduce Maggie Alegria to you this evening. 15 00:00:42.071 --> 00:00:44.511 I have known Maggie since 2004 16 00:00:44.511 --> 00:00:47.771 when we worked together on, Maggie hired me 17 00:00:47.771 --> 00:00:50.491 as a project manager for the National Latino 18 00:00:50.491 --> 00:00:53.011 and Asian-American study and really took 19 00:00:53.011 --> 00:00:55.811 a chance on me as a clinician that really wanted 20 00:00:55.811 --> 00:00:57.471 to learn about research. 21 00:00:57.471 --> 00:01:01.251 Maggie herself is a clinician and a researcher by training, 22 00:01:01.251 --> 00:01:05.111 and as you can see from the bio here, which I'll just 23 00:01:05.111 --> 00:01:06.631 read a little bit about. 24 00:01:06.631 --> 00:01:08.611 So Maggie is the director of the Center for 25 00:01:08.611 --> 00:01:10.611 Multi-Cultural Mental Health Research 26 00:01:10.611 --> 00:01:12.251 at the Cambridge Health Alliance 27 00:01:12.251 --> 00:01:13.911 and Harvard Medical School. 28 00:01:13.911 --> 00:01:15.671 As a professor of psychology in the 29 00:01:15.671 --> 00:01:18.411 Department of Psychiatry at Harvard Medical School, 30 00:01:18.411 --> 00:01:22.631 Dr. Alegria is the first Latina full professor at Harvard, 31 00:01:22.631 --> 00:01:24.291 which I think is really important to highlight. 32 00:01:24.291 --> 00:01:26.801 (applause) 33 00:01:27.831 --> 00:01:30.531 Maggie is currently the PI of three national institutes 34 00:01:30.531 --> 00:01:33.491 of health-funded research studies, the International 35 00:01:33.491 --> 00:01:37.011 Latina Research Partnership, Effects of Social Context, 36 00:01:37.011 --> 00:01:40.491 Culture, and Minority Status on Depression and Anxiety, 37 00:01:40.491 --> 00:01:43.571 and Building Community Capacity for Disability Prevention 38 00:01:43.571 --> 00:01:45.391 for Minority Elders. 39 00:01:45.391 --> 00:01:48.791 She's also the PI of the PCORI Grant, a patient-centered 40 00:01:48.791 --> 00:01:52.131 outcomes research institute project, Effectiveness 41 00:01:52.131 --> 00:01:56.711 of Decide in Patient-Provider Communication, 42 00:01:56.711 --> 00:01:58.511 Therapeutic Alliance and Care Coordination. 43 00:01:58.511 --> 00:02:01.511 Dr. Alegria has published over 200 papers, 44 00:02:01.511 --> 00:02:04.771 editorials, intervention trainings, et cetera. 45 00:02:04.771 --> 00:02:07.931 I looked at her CV this morning before I came today 46 00:02:07.931 --> 00:02:11.311 and it's 56 pages long, which just tells you, you know, 47 00:02:11.311 --> 00:02:15.331 this is an incredibly accomplished and thoughtful woman 48 00:02:15.331 --> 00:02:19.071 that has dedicated her life to research that moves forward 49 00:02:19.071 --> 00:02:23.111 the agenda of individuals that have been marginalized 50 00:02:23.111 --> 00:02:25.471 in any way, shape, or form. 51 00:02:25.471 --> 00:02:29.352 And her research and influence has incredible depth 52 00:02:29.352 --> 00:02:32.172 in terms of her work on different councils, 53 00:02:32.172 --> 00:02:36.731 public service work, work with communities, et cetera. 54 00:02:36.731 --> 00:02:40.272 So it is, I'll let you read the bio, you have it here, 55 00:02:40.272 --> 00:02:42.592 but it is a great pleasure and a privilege 56 00:02:42.592 --> 00:02:44.772 to introduce Maggie to you today. 57 00:02:44.772 --> 00:02:45.452 - [Maggie] Thank you. 58 00:02:45.452 --> 00:02:47.921 (applause) 59 00:02:51.772 --> 00:02:55.172 I think this is one of the best pieces of, 60 00:02:55.172 --> 00:02:59.032 seeing your trainees become the faculty 61 00:02:59.032 --> 00:03:00.902 and eventually your boss. 62 00:03:01.412 --> 00:03:02.672 So I'm hoping that the next step 63 00:03:02.672 --> 00:03:04.582 will be Maria being my boss. 64 00:03:04.732 --> 00:03:05.452 (laughter) 65 00:03:05.452 --> 00:03:07.392 I really want to thank you, because 66 00:03:07.392 --> 00:03:10.842 coming here at 7:30 is quite an achievement. 67 00:03:11.751 --> 00:03:14.711 People being so nice to really share 68 00:03:14.711 --> 00:03:17.232 a little of their time, especially because 69 00:03:17.232 --> 00:03:19.872 I know you have 300 other things to do. 70 00:03:19.872 --> 00:03:21.992 So I'm very grateful. 71 00:03:21.992 --> 00:03:25.011 I want to thank Mary Ann for inviting me, 72 00:03:25.011 --> 00:03:27.751 Peggy for the wonderful coffee, 73 00:03:27.751 --> 00:03:32.472 Irene for the amazing food that she took me to, 74 00:03:32.472 --> 00:03:35.632 Maria for the great presentation, 75 00:03:35.632 --> 00:03:39.981 and Dr. Candelario for an amazing story. 76 00:03:40.532 --> 00:03:42.971 If you keep me here a little bit more, 77 00:03:42.971 --> 00:03:45.391 I probably won't go back to Harvard, 78 00:03:45.391 --> 00:03:47.072 so be careful what you ask for. 79 00:03:47.072 --> 00:03:48.692 (applause) 80 00:03:48.692 --> 00:03:51.152 So, let me start by telling you a little bit 81 00:03:51.152 --> 00:03:54.072 of why I started to do this work, 82 00:03:54.072 --> 00:03:56.812 partly because I was doing a lot of work 83 00:03:56.812 --> 00:04:01.372 describing problems in immigrant communities, 84 00:04:01.372 --> 00:04:04.792 but felt eventually that nothing was happening. 85 00:04:04.792 --> 00:04:07.692 I've actually been in this area for, you won't believe it, 86 00:04:07.692 --> 00:04:12.692 but 30 years, and in 30 years, the change 87 00:04:12.872 --> 00:04:14.872 is so minimal. 88 00:04:14.872 --> 00:04:17.972 Actually if you look at disparities, 89 00:04:17.972 --> 00:04:20.373 they're getting worse, not getting better, 90 00:04:20.373 --> 00:04:21.893 in mental health care. 91 00:04:21.893 --> 00:04:25.973 This is one of the areas there has been no traction. 92 00:04:25.973 --> 00:04:29.133 No traction, you see a lot of the people 93 00:04:29.133 --> 00:04:30.793 talking about behavioral health 94 00:04:30.793 --> 00:04:32.493 and behavioral health, but actually 95 00:04:32.493 --> 00:04:34.833 there's been no traction whatsoever 96 00:04:34.833 --> 00:04:37.833 in terms of disparities. 97 00:04:37.833 --> 00:04:40.973 So I got a little tired and decided, this is, 98 00:04:40.973 --> 00:04:42.613 I mean, I have to, someone asked me 99 00:04:42.613 --> 00:04:44.513 "what's your impact?" 100 00:04:44.513 --> 00:04:48.453 And I became like, I couldn't really say anything. 101 00:04:48.453 --> 00:04:50.413 I said, "Well I have some publications, but, 102 00:04:50.413 --> 00:04:54.273 "beyond publications, I mean, not really a big impact." 103 00:04:54.273 --> 00:04:56.893 And decided to go into this area. 104 00:04:56.893 --> 00:05:01.033 I'm going to talk today about three areas very quickly. 105 00:05:01.033 --> 00:05:04.473 One, why immigrants do not seem to access care 106 00:05:04.473 --> 00:05:07.173 for their mental health problems, tell you a little bit 107 00:05:07.173 --> 00:05:12.053 of the problems we have of why for over the past 40 years 108 00:05:12.053 --> 00:05:14.953 we've been talking about this with no traction 109 00:05:14.953 --> 00:05:17.433 with hopes that you are the generation 110 00:05:17.433 --> 00:05:19.833 that can make a big difference. 111 00:05:19.833 --> 00:05:21.653 Second thing I want to talk a little bit about is 112 00:05:21.653 --> 00:05:24.433 what have we found out that works. 113 00:05:24.433 --> 00:05:25.053 (feedback) 114 00:05:25.053 --> 00:05:26.483 Oops. 115 00:05:26.833 --> 00:05:29.413 And then finally, I'll talk about funding 116 00:05:29.413 --> 00:05:31.053 because it's part of the biggest problem 117 00:05:31.053 --> 00:05:33.993 we have in this arena is that the funding 118 00:05:33.993 --> 00:05:36.184 is really not allying. 119 00:05:38.834 --> 00:05:39.934 Oh, okay. 120 00:05:39.934 --> 00:05:41.324 So even better. 121 00:05:41.614 --> 00:05:43.894 So I'm going to start with children, because 122 00:05:43.894 --> 00:05:47.034 I think for some reason in this country, 123 00:05:47.034 --> 00:05:51.634 although the demographics are dramatically changing, 124 00:05:51.634 --> 00:05:54.554 what we're seeing is, there's no attention to, 125 00:05:54.554 --> 00:05:56.574 this is a new landscape. 126 00:05:56.574 --> 00:05:58.894 The children in schools look like 127 00:05:58.894 --> 00:06:00.554 nothing we had before. 128 00:06:00.554 --> 00:06:03.314 And it seems that we are not really prepared 129 00:06:03.314 --> 00:06:05.274 to deal with all these immigrant children 130 00:06:05.274 --> 00:06:06.714 that are coming in. 131 00:06:06.714 --> 00:06:11.714 By 2050, more than one-third of the hundred million 132 00:06:12.234 --> 00:06:17.114 US children will be minorities, more than one-third. 133 00:06:17.114 --> 00:06:20.394 But if you think about it, there's a huge gap 134 00:06:20.394 --> 00:06:24.914 between the populations, the size of the populations 135 00:06:24.914 --> 00:06:27.834 and actually the knowledge that we have 136 00:06:27.834 --> 00:06:29.834 in how we can serve them. 137 00:06:29.834 --> 00:06:32.254 So there's a big gap in this area. 138 00:06:32.254 --> 00:06:34.474 You would think everyone's preparing. 139 00:06:34.474 --> 00:06:37.714 By the way, I gave a talk about disparities 140 00:06:37.714 --> 00:06:41.895 to the state legislators and things, 141 00:06:41.895 --> 00:06:44.175 and the amazing thing is, we had a group 142 00:06:44.175 --> 00:06:45.995 of people from the community. 143 00:06:45.995 --> 00:06:48.155 And everyone was saying, you know, we talked 144 00:06:48.155 --> 00:06:52.215 about this 20 years ago, and again we're talking 145 00:06:52.215 --> 00:06:55.855 about the same, same issues, it was so sad. 146 00:06:55.855 --> 00:06:59.015 And one of the things that we talk in that brief 147 00:06:59.015 --> 00:07:02.715 is disparities, I have to say, have become 148 00:07:02.715 --> 00:07:06.475 better for certain groups, but not all groups. 149 00:07:06.475 --> 00:07:09.125 And we have to keep on watching it. 150 00:07:09.155 --> 00:07:11.896 The other thing is that, besides not knowing 151 00:07:11.896 --> 00:07:14.496 a lot about how to help these children, 152 00:07:14.496 --> 00:07:16.736 these children have special needs 153 00:07:16.736 --> 00:07:19.416 that we are not prepared to serve. 154 00:07:19.416 --> 00:07:22.756 They have incredibly high rates of trauma, 155 00:07:22.756 --> 00:07:25.516 they have, a lot of them have had 156 00:07:25.516 --> 00:07:29.276 extended parental separation, they have 157 00:07:29.276 --> 00:07:31.916 few resources to access care because 158 00:07:31.916 --> 00:07:34.776 they come from high rates of poverty. 159 00:07:34.776 --> 00:07:37.956 They also have problems of food and housing, 160 00:07:37.956 --> 00:07:40.396 especially one of the areas that you should be 161 00:07:40.396 --> 00:07:44.176 looking and assessing is food insecurity. 162 00:07:44.176 --> 00:07:47.696 Food insecurity is tied to every single 163 00:07:47.696 --> 00:07:51.296 behavioral health outcome you can imagine. 164 00:07:51.296 --> 00:07:56.296 It's tied to suicide, it's tied to depression, anxiety, 165 00:07:57.216 --> 00:08:01.596 you name it, food insecurity is strongly tied 166 00:08:01.596 --> 00:08:04.176 to bad behavioral outcomes. 167 00:08:04.176 --> 00:08:06.696 We also see in these children, especially 168 00:08:06.696 --> 00:08:10.276 if they are undocumented, high rates of uninsurance. 169 00:08:10.276 --> 00:08:14.336 So providers are struggling to find how can 170 00:08:14.336 --> 00:08:17.816 I serve these kids that have such immense needs, 171 00:08:17.816 --> 00:08:20.866 and so little access to care. 172 00:08:21.196 --> 00:08:23.436 The other big problem that you'll see 173 00:08:23.436 --> 00:08:26.356 is the issue of linguistic isolation. 174 00:08:26.356 --> 00:08:28.656 These kids live in families with 175 00:08:28.656 --> 00:08:30.946 a lot of linguistic isolation. 176 00:08:33.957 --> 00:08:37.097 So why do these children do not seem 177 00:08:37.097 --> 00:08:40.417 to access mental health for their problems, 178 00:08:40.417 --> 00:08:44.277 and why has this not changed for over 40 years? 179 00:08:44.277 --> 00:08:46.897 You would wonder, I mean, we all know about it, 180 00:08:46.897 --> 00:08:48.737 why aren't we changing it? 181 00:08:48.737 --> 00:08:51.257 Let me show you the rates of children 182 00:08:51.257 --> 00:08:55.387 in immigrant families that are linguistically isolated. 183 00:08:55.577 --> 00:08:58.397 23 percent have no one in their household 184 00:08:58.397 --> 00:09:00.177 that speaks English. 185 00:09:00.177 --> 00:09:01.757 So one of the biggest problems 186 00:09:01.757 --> 00:09:05.897 is actually try getting services, first in English, 187 00:09:05.897 --> 00:09:08.157 and then if you don't speak English, 188 00:09:08.157 --> 00:09:10.857 you are completely wiped out, especially 189 00:09:10.857 --> 00:09:14.297 in certain areas of Massachusetts 190 00:09:14.297 --> 00:09:16.457 where you would think that we have 191 00:09:16.457 --> 00:09:18.897 so many immigrant populations that people 192 00:09:18.897 --> 00:09:21.197 would be ready to have these services. 193 00:09:21.197 --> 00:09:24.577 So right now we're running a project that's on 194 00:09:24.577 --> 00:09:26.477 mental health and substance abuse. 195 00:09:26.477 --> 00:09:28.337 I was telling Maria that one of the biggest 196 00:09:28.337 --> 00:09:30.677 problems we're having is incredibly 197 00:09:30.677 --> 00:09:34.577 high rates of suicide ideation. 198 00:09:34.577 --> 00:09:37.317 Try getting someone to help you, 199 00:09:37.317 --> 00:09:39.037 the best team that has someone 200 00:09:39.037 --> 00:09:41.257 that speaks Spanish. 201 00:09:41.257 --> 00:09:46.257 Forget Spanish, imagine any Asian languages, 202 00:09:46.317 --> 00:09:48.317 Mandarin or Cantonese. 203 00:09:48.317 --> 00:09:53.187 Or try Hatian Creole, or try Portuguese. 204 00:09:53.417 --> 00:09:54.617 No one. 205 00:09:54.617 --> 00:09:58.697 To something so serious as suicidality. 206 00:09:58.697 --> 00:10:00.917 So this is an area where we're having 207 00:10:00.917 --> 00:10:04.497 terrible, terrible problems in getting services. 208 00:10:04.497 --> 00:10:07.377 And if you're in substance abuse, if your child 209 00:10:07.377 --> 00:10:09.317 has a substance abuse problem, 210 00:10:09.317 --> 00:10:14.317 try getting some services that is non-English. 211 00:10:14.657 --> 00:10:16.177 Almost nothing. 212 00:10:16.177 --> 00:10:18.377 The other thing you'll see, and this is 213 00:10:18.377 --> 00:10:22.177 a very, it's uninsurance, children by poverty status, 214 00:10:22.177 --> 00:10:26.057 household income, age, race, and Hispanic origin. 215 00:10:26.057 --> 00:10:28.717 But I want you to see non-citizens. 216 00:10:28.717 --> 00:10:31.298 29 percent of non-citizens are going to 217 00:10:31.298 --> 00:10:33.638 be uninsured children. 218 00:10:33.638 --> 00:10:35.718 So this creates a serious problem 219 00:10:35.718 --> 00:10:37.898 because you don't have that many alternatives. 220 00:10:37.898 --> 00:10:40.178 Who are the providers that are willing to see 221 00:10:40.178 --> 00:10:42.858 these children without insurance? 222 00:10:42.858 --> 00:10:45.158 Okay, you have another big, big issue. 223 00:10:45.158 --> 00:10:48.398 You can see there in terms of less income, 224 00:10:48.398 --> 00:10:52.418 the children in poverty are less likely to have 225 00:10:52.418 --> 00:10:54.658 any access to care. 226 00:10:54.658 --> 00:10:57.678 I wanted to show you that in Massachusetts by the way, 227 00:10:57.678 --> 00:10:59.658 we're actually quite lucky. 228 00:10:59.658 --> 00:11:01.978 Because if you think about Massachusetts, 229 00:11:01.978 --> 00:11:05.278 one of the things Massachusetts is that green, 230 00:11:05.278 --> 00:11:07.178 very green light, I don't know 231 00:11:07.178 --> 00:11:10.038 if you can see it here, we are in Massachusetts. 232 00:11:10.038 --> 00:11:13.558 And you can see that it's one of the few places 233 00:11:13.558 --> 00:11:17.098 that gives medical coverage for children 234 00:11:17.098 --> 00:11:19.508 regardless of status. 235 00:11:20.098 --> 00:11:22.518 However, there's questions of whether 236 00:11:22.518 --> 00:11:25.568 that's going to change with the Affordable Care Act. 237 00:11:25.718 --> 00:11:27.518 Because the Affordable Care Act 238 00:11:27.518 --> 00:11:30.298 is making a distinction between children 239 00:11:30.298 --> 00:11:33.858 that are documented and legally here, 240 00:11:33.858 --> 00:11:36.398 and children that are undocumented. 241 00:11:36.398 --> 00:11:38.458 So we hope that doesn't change, 242 00:11:38.458 --> 00:11:40.578 but it's something to be seen, and something 243 00:11:40.578 --> 00:11:42.608 that might be scary. 244 00:11:44.099 --> 00:11:45.658 The other thing I wanted to show you 245 00:11:45.658 --> 00:11:47.198 was quality of care. 246 00:11:47.198 --> 00:11:49.138 We've been doing work looking at 247 00:11:49.138 --> 00:11:53.319 quality of care and both attention deficit disorder 248 00:11:53.319 --> 00:11:56.499 and depression are really very, very, 249 00:11:56.499 --> 00:12:01.499 like clear-cut, you know, easy things to treat. 250 00:12:01.638 --> 00:12:03.559 Very easy things to treat. 251 00:12:03.559 --> 00:12:07.718 This is in a study that we publish, Nick Carson, 252 00:12:07.718 --> 00:12:11.419 he's one of my colleagues, and this group, 253 00:12:11.419 --> 00:12:15.359 in 2011, where we saw in a system of care 254 00:12:15.359 --> 00:12:18.399 that serves a lot of immigrant families, 255 00:12:18.399 --> 00:12:22.819 we compare in this study, Haitian, African American 256 00:12:22.819 --> 00:12:25.619 and White kids to see if they were 257 00:12:25.619 --> 00:12:27.959 receiving guideline-concordant care 258 00:12:27.959 --> 00:12:32.039 for attention deficit disorder and depression. 259 00:12:32.039 --> 00:12:36.039 And as you can see there, dramatic difference 260 00:12:36.039 --> 00:12:39.544 within the same system of care. 261 00:12:39.544 --> 00:12:42.944 As you can see there, whites receive, 262 00:12:42.944 --> 00:12:45.124 are much more likely to receive 263 00:12:45.124 --> 00:12:47.503 guideline-concordant care than either 264 00:12:47.503 --> 00:12:50.363 black or Haitian kids. 265 00:12:50.363 --> 00:12:53.884 It's amazing, this is the same provider, okay, 266 00:12:53.884 --> 00:12:57.004 the same providers in the same system of care. 267 00:12:57.004 --> 00:12:59.663 Some people have said, well it's partly a problem 268 00:12:59.663 --> 00:13:02.664 that they go to different systems of care. 269 00:13:02.664 --> 00:13:04.624 But this is not the case. 270 00:13:04.624 --> 00:13:06.584 This is in the same system of care 271 00:13:06.584 --> 00:13:09.044 with the same providers, they get 272 00:13:09.044 --> 00:13:10.624 less quality care. 273 00:13:14.524 --> 00:13:16.863 The other thing I wanted to show you, 274 00:13:16.863 --> 00:13:19.333 is when do people get care? 275 00:13:19.524 --> 00:13:21.854 And this is a very sad story. 276 00:13:22.284 --> 00:13:25.204 So we publish a paper in psychiatric services 277 00:13:25.204 --> 00:13:28.984 showing that if you look, these are people 278 00:13:28.984 --> 00:13:32.604 that have White, Black and Latinos, that have 279 00:13:32.604 --> 00:13:36.843 any drug or alcohol dependence or abuse. 280 00:13:36.843 --> 00:13:39.364 These are people that are quite severe 281 00:13:39.364 --> 00:13:44.364 in terms of alcohol, drugs, in terms of dependence or abuse. 282 00:13:44.584 --> 00:13:47.944 And if you look at the rates there, you actually see 283 00:13:47.944 --> 00:13:50.704 what we call a reverse disparity 284 00:13:50.704 --> 00:13:54.762 if they were treated in the substance abuse treatment. 285 00:13:54.762 --> 00:13:57.722 Okay, so you see what we call a reverse disparity. 286 00:13:57.722 --> 00:14:01.022 That's white are less likely to be treated 287 00:14:01.022 --> 00:14:04.242 in the substance abuse treatment sector 288 00:14:04.242 --> 00:14:09.242 as compared to blacks or Latinos, okay? 289 00:14:09.262 --> 00:14:11.863 But if you look at mental health care 290 00:14:11.863 --> 00:14:14.603 treating these populations, they're 291 00:14:14.603 --> 00:14:17.043 much more likely to be, whites are 292 00:14:17.043 --> 00:14:19.363 much more likely to be treated 293 00:14:19.363 --> 00:14:22.823 in the mental health system, for the same condition, 294 00:14:22.823 --> 00:14:23.483 by the way. 295 00:14:23.483 --> 00:14:25.463 These are all with the same condition. 296 00:14:25.463 --> 00:14:28.103 Compared to blacks and Latinos. 297 00:14:28.103 --> 00:14:30.823 So when you ask, having been treated 298 00:14:30.823 --> 00:14:33.683 in any of the systems, what you see is 299 00:14:33.683 --> 00:14:37.143 that then there is a disparities, with whites 300 00:14:37.143 --> 00:14:39.423 being more likely to be treated. 301 00:14:39.423 --> 00:14:40.803 But guess what? 302 00:14:40.803 --> 00:14:45.043 What's really driving the people that are treated 303 00:14:45.043 --> 00:14:47.763 in the substance abuse system? 304 00:14:47.763 --> 00:14:51.123 Unfortunately, what we see is, Latinos, 305 00:14:51.123 --> 00:14:54.563 no matter if they have a criminal history or not, 306 00:14:54.563 --> 00:14:56.683 are less likely to be treated. 307 00:14:56.683 --> 00:14:59.223 Once you adjust for the experience 308 00:14:59.223 --> 00:15:02.103 of being in the Criminal Justice system, 309 00:15:02.103 --> 00:15:04.763 but what you see is, once you adjust for 310 00:15:04.763 --> 00:15:09.763 having a criminal history, or SCS, you then see 311 00:15:11.003 --> 00:15:14.043 that actually the disparities in the substance abuse 312 00:15:14.043 --> 00:15:18.994 treatment become larger for both blacks and Latinos. 313 00:15:19.364 --> 00:15:22.644 In other words, most of the people that are entering, 314 00:15:22.644 --> 00:15:26.264 Latinos and black, to the substance abuse system, 315 00:15:26.264 --> 00:15:29.304 are being included because of criminal history 316 00:15:29.304 --> 00:15:31.294 or low SCS. 317 00:15:31.964 --> 00:15:35.224 But they're coming through a different sector of care, 318 00:15:35.224 --> 00:15:37.654 I mean, which is very worrisome. 319 00:15:38.964 --> 00:15:41.324 I think for elder immigrants, we're finding 320 00:15:41.324 --> 00:15:44.124 the same, identical story. 321 00:15:44.124 --> 00:15:46.664 Really sad, identical story. 322 00:15:46.664 --> 00:15:49.964 We publish a paper with (unclear) 323 00:15:49.964 --> 00:15:54.324 showing that if you are Latino or Asian, 324 00:15:54.324 --> 00:15:58.924 only one in 10, one in 10 would receive 325 00:15:58.924 --> 00:16:01.464 quality care for depression. 326 00:16:01.464 --> 00:16:04.184 So that means that nine out of the 10 327 00:16:04.184 --> 00:16:06.864 are not receiving any quality care. 328 00:16:06.864 --> 00:16:09.164 And we're talking about depression. 329 00:16:09.164 --> 00:16:13.244 Depression is like, you know, such a, 330 00:16:13.244 --> 00:16:15.344 it's not like we're talking about 331 00:16:15.344 --> 00:16:18.804 a complicated schizophrenia or bipolar, 332 00:16:18.804 --> 00:16:20.424 or something more complicated. 333 00:16:20.424 --> 00:16:22.564 This is for depression. 334 00:16:22.564 --> 00:16:25.364 So the rates are very, very low. 335 00:16:25.364 --> 00:16:27.804 And it's important if you think about it, 336 00:16:27.804 --> 00:16:32.164 because many of our non-English elders 337 00:16:32.164 --> 00:16:34.004 are really in isolation. 338 00:16:34.004 --> 00:16:36.244 We see a lot of depression, a lot of 339 00:16:36.244 --> 00:16:39.564 non-acceptance that they have a mental illness, 340 00:16:39.564 --> 00:16:42.264 and this is partly because their support system 341 00:16:42.264 --> 00:16:46.864 has really eroded by family disruption, 342 00:16:46.864 --> 00:16:50.784 occupational demands, and growing disorganization 343 00:16:50.784 --> 00:16:53.644 of the families in urban environments. 344 00:16:53.644 --> 00:16:56.504 If you think about it, for a lot of these elders, 345 00:16:56.504 --> 00:16:59.424 they came and sacrificed for their children. 346 00:16:59.424 --> 00:17:01.844 Work, work, work, work, with the expectation 347 00:17:01.844 --> 00:17:03.464 that someone's going to support them 348 00:17:03.464 --> 00:17:06.064 and really take care of them, and suddenly 349 00:17:06.064 --> 00:17:09.004 they find that that's not the norm, necessarily 350 00:17:09.004 --> 00:17:11.204 in this country, and that they're actually 351 00:17:11.204 --> 00:17:14.654 going to be left by themselves. 352 00:17:16.585 --> 00:17:19.305 So this is why I say only 8.6 percent 353 00:17:19.305 --> 00:17:22.245 of Asian Americans report having used 354 00:17:22.245 --> 00:17:24.605 any mental health services, compared to 355 00:17:24.605 --> 00:17:27.545 17 percent of the general population. 356 00:17:27.545 --> 00:17:30.525 So very, very, very limited. 357 00:17:30.525 --> 00:17:33.145 So why hasn't then this changed over 358 00:17:33.145 --> 00:17:35.085 the past 40 years? 359 00:17:35.085 --> 00:17:37.165 I think we have done a lot of work 360 00:17:37.165 --> 00:17:40.365 finding that there are several things that happened. 361 00:17:40.365 --> 00:17:43.085 First, what we're finding is that most elders 362 00:17:43.085 --> 00:17:45.385 don't want to recognize that they have, 363 00:17:45.385 --> 00:17:47.525 they don't really want, they don't think 364 00:17:47.525 --> 00:17:50.945 the symptoms are symptoms of mental health. 365 00:17:50.945 --> 00:17:54.565 So many of them really report that their symptoms 366 00:17:54.565 --> 00:17:58.165 have to do with some other thing, like suffering, 367 00:17:58.165 --> 00:18:01.545 like general conditions of being aged, aging, 368 00:18:01.545 --> 00:18:03.685 but not necessarily that they have 369 00:18:03.685 --> 00:18:05.285 a mental health problem. 370 00:18:05.285 --> 00:18:07.685 There's a huge stigma, especially if 371 00:18:07.685 --> 00:18:09.865 you come from a country where people 372 00:18:09.865 --> 00:18:12.065 are actually secluded if they have 373 00:18:12.065 --> 00:18:13.465 a mental health problem. 374 00:18:13.465 --> 00:18:15.925 So recognizing that they have a mental health problem 375 00:18:15.925 --> 00:18:18.225 has a different connotation. 376 00:18:18.225 --> 00:18:19.925 And people say a lot, you know, 377 00:18:19.925 --> 00:18:23.225 I'm not going to go into mental health care, 378 00:18:23.225 --> 00:18:25.745 that's really for the very, very sick. 379 00:18:25.745 --> 00:18:27.385 You know, for the ones that are locos, 380 00:18:27.385 --> 00:18:30.705 or people that are completely out of their realm. 381 00:18:30.705 --> 00:18:33.665 The other thing we've seen and we publish a lot, 382 00:18:33.665 --> 00:18:36.565 is what other people call self-reliance. 383 00:18:36.565 --> 00:18:38.645 You know, people in these communities 384 00:18:38.645 --> 00:18:41.165 have a government or have a system 385 00:18:41.165 --> 00:18:43.645 that doesn't respond to them, so the idea 386 00:18:43.645 --> 00:18:45.565 that someone can take care of them 387 00:18:45.565 --> 00:18:49.265 and help them is not in their tool box. 388 00:18:49.265 --> 00:18:51.465 So they believe that actually they should 389 00:18:51.465 --> 00:18:54.725 be self-reliant and try to problem solve. 390 00:18:54.725 --> 00:18:57.285 The second thing is we have, there's very, 391 00:18:57.285 --> 00:19:00.185 very few access to mental health services 392 00:19:00.185 --> 00:19:03.085 for a non-English populations. 393 00:19:03.085 --> 00:19:06.045 There's a lot of unfamiliarity 394 00:19:06.045 --> 00:19:08.505 about the mandates, about who's 395 00:19:08.505 --> 00:19:11.625 eligible to go, and many of these people, 396 00:19:11.625 --> 00:19:14.825 by the way, are not eligible to Medicare, 397 00:19:14.825 --> 00:19:17.905 so they don't really have a source of insurance 398 00:19:17.905 --> 00:19:20.785 like the other elders that we have in this country. 399 00:19:20.785 --> 00:19:23.065 So it makes it very hard for them. 400 00:19:23.065 --> 00:19:25.645 There's also lack of access to Medicare 401 00:19:25.645 --> 00:19:29.585 and employer-based coverage and usual 402 00:19:29.585 --> 00:19:31.165 healthcare providers. 403 00:19:31.165 --> 00:19:34.065 One of the biggest areas where they've shown 404 00:19:34.065 --> 00:19:37.465 is that compared to the general population, 405 00:19:37.465 --> 00:19:40.365 this population has a lot of primary care providers 406 00:19:40.365 --> 00:19:44.825 but they don't have a lot of specialty care provider access. 407 00:19:44.825 --> 00:19:47.066 I don't know if any of you have tried getting 408 00:19:47.066 --> 00:19:52.066 a mental health for PCPs in primary care providers. 409 00:19:52.805 --> 00:19:57.385 One of the worst areas actually, we underlined this, 410 00:19:57.385 --> 00:20:02.385 is if you look at Medicaid, very, very few providers, 411 00:20:03.946 --> 00:20:08.416 specialty providers, are willing to take Medicaid patients. 412 00:20:09.006 --> 00:20:12.886 The pay is so low in behavioral health 413 00:20:12.886 --> 00:20:15.406 that very few people are willing to take it. 414 00:20:15.406 --> 00:20:18.386 It doesn't happen for other specialties. 415 00:20:18.386 --> 00:20:20.625 So behavioral health is one of the ones 416 00:20:20.625 --> 00:20:23.125 that is really the worst, where people 417 00:20:23.125 --> 00:20:26.066 are actually not covering. 418 00:20:26.066 --> 00:20:27.706 But the other thing we have is 419 00:20:27.706 --> 00:20:29.946 fears on documentation. 420 00:20:29.946 --> 00:20:32.846 You cannot imagine how many people 421 00:20:32.846 --> 00:20:35.806 miss their appointments because they see 422 00:20:35.806 --> 00:20:38.966 a policeman and immediately they turn around 423 00:20:38.966 --> 00:20:40.826 and go back home. 424 00:20:40.826 --> 00:20:43.085 Things like that, that you would not have thought 425 00:20:43.085 --> 00:20:45.046 are things that happen. 426 00:20:45.046 --> 00:20:46.806 And then there's a lot of poor quality 427 00:20:46.806 --> 00:20:50.386 mental health services, so the communities here 428 00:20:50.386 --> 00:20:52.786 that people are not getting better, 429 00:20:52.786 --> 00:20:57.646 and that in itself becomes a vicious cycle. 430 00:20:57.646 --> 00:21:00.305 I wanted to just clearly cover this 431 00:21:00.305 --> 00:21:02.786 because I think there's a lot of confusion. 432 00:21:02.786 --> 00:21:06.046 In fact, I have (unclear) which is a person 433 00:21:06.046 --> 00:21:09.746 that works with me on the issue of immigrants 434 00:21:09.746 --> 00:21:13.306 and the health care laws, and they are, 435 00:21:13.306 --> 00:21:16.027 with all the things that are happening, 436 00:21:16.027 --> 00:21:18.347 especially, what we see is that 437 00:21:18.347 --> 00:21:21.047 the only people that are eligible, supposedly, 438 00:21:21.047 --> 00:21:23.467 according to the Affordable Care Act, 439 00:21:23.467 --> 00:21:25.327 are people that have been here 440 00:21:25.327 --> 00:21:30.026 for more than five years as legal residents 441 00:21:30.026 --> 00:21:33.567 or what's called legally here. 442 00:21:33.567 --> 00:21:37.527 So this really is putting a lot of people 443 00:21:37.527 --> 00:21:42.527 at jeopardy of losing things like CHIP or Medicaid 444 00:21:42.528 --> 00:21:46.568 that were actually covered here in Massachusetts. 445 00:21:46.568 --> 00:21:48.988 And it's going to be something to be looked. 446 00:21:48.988 --> 00:21:52.648 So for undocumented migrants, what you hear 447 00:21:52.648 --> 00:21:55.487 over and over again, is that they're eligible 448 00:21:55.487 --> 00:21:58.007 for emergency services. 449 00:21:58.007 --> 00:21:59.888 But that's about it. 450 00:21:59.888 --> 00:22:02.368 And this is an area where people are trying 451 00:22:02.368 --> 00:22:04.968 to fight and actually, the people 452 00:22:04.968 --> 00:22:07.788 from Healthcare for All in Massachusetts 453 00:22:07.788 --> 00:22:11.388 have been advocating for the immigrant group 454 00:22:11.388 --> 00:22:13.678 to be included. 455 00:22:14.287 --> 00:22:16.788 I think one of the biggest problems we have 456 00:22:16.788 --> 00:22:20.528 that is now becoming very obvious to everyone, 457 00:22:20.528 --> 00:22:24.228 including Deval Patrick when he was in the states 458 00:22:24.228 --> 00:22:28.668 is that we have a horrendous work shortages, 459 00:22:28.668 --> 00:22:30.227 work force shortages. 460 00:22:30.227 --> 00:22:33.667 By the way, in the IOM I participated in this report, 461 00:22:33.667 --> 00:22:36.368 it's a great report if you haven't read it. 462 00:22:36.368 --> 00:22:38.909 It's the Mental Health and Substance Use 463 00:22:38.909 --> 00:22:43.859 of Older Adults in Whose Hands Are We? 464 00:22:44.129 --> 00:22:46.809 And it's basically that you look at 465 00:22:46.809 --> 00:22:50.149 who's taking care of the elders 466 00:22:50.149 --> 00:22:52.569 is people that have no preparation, 467 00:22:52.569 --> 00:22:56.509 zero preparation for behavioral health. 468 00:22:56.509 --> 00:22:59.129 And if you look at a place like Florida, 469 00:22:59.129 --> 00:23:02.549 where they were actually looking at who comes 470 00:23:02.549 --> 00:23:06.869 into behavioral and psychotropic medications 471 00:23:06.869 --> 00:23:09.489 and the rates of psychotropic medication 472 00:23:09.489 --> 00:23:11.089 three months after you have been 473 00:23:11.089 --> 00:23:15.829 in a nursing home, are exponential. 474 00:23:15.829 --> 00:23:19.049 Three months and people go into 475 00:23:19.049 --> 00:23:23.129 amazing rates of psychotropic medication. 476 00:23:23.129 --> 00:23:27.589 People that had never had a mental health problem 477 00:23:27.589 --> 00:23:29.509 in their life, and suddenly they're coming 478 00:23:29.509 --> 00:23:31.509 into nursing homes and are getting 479 00:23:31.509 --> 00:23:33.309 psychotropic medications. 480 00:23:33.309 --> 00:23:35.889 And maybe some needed it, but we were 481 00:23:35.889 --> 00:23:38.509 so concerned that this report covers, 482 00:23:38.509 --> 00:23:41.829 we need to do something rapidly. 483 00:23:41.829 --> 00:23:43.109 But I mean rapidly. 484 00:23:43.109 --> 00:23:45.510 And the work force is not there. 485 00:23:45.510 --> 00:23:49.270 We don't have our work force trained for the elders. 486 00:23:49.270 --> 00:23:53.060 No geriatric work force whatsoever. 487 00:23:53.170 --> 00:23:55.990 So, anyone who's here and wants to go into 488 00:23:55.990 --> 00:23:59.950 geriatric social work, believe me, you have 489 00:23:59.950 --> 00:24:02.430 your career for sure. 490 00:24:02.430 --> 00:24:05.210 I'm not kidding, I'm not kidding, if you look 491 00:24:05.210 --> 00:24:07.890 at this report, please look at this report, 492 00:24:07.890 --> 00:24:10.390 you'll be convinced immediately, 493 00:24:10.390 --> 00:24:12.330 but I mean immediately. 494 00:24:12.330 --> 00:24:17.090 I think we have also very serious problems in what 495 00:24:17.090 --> 00:24:18.970 we have been offering people in terms of 496 00:24:18.970 --> 00:24:20.470 our practice models. 497 00:24:20.470 --> 00:24:22.770 I'm very concerned our practice models 498 00:24:22.770 --> 00:24:26.630 are really not made for immigrant populations. 499 00:24:26.630 --> 00:24:28.750 The idea that you can get someone 500 00:24:28.750 --> 00:24:33.750 to come 16 times, 16 times during three months for care, 501 00:24:35.350 --> 00:24:37.790 it's someone that really does not know 502 00:24:37.790 --> 00:24:40.850 the life of an immigrant family. 503 00:24:40.850 --> 00:24:44.030 So it's, some of the concerns that they raise 504 00:24:44.030 --> 00:24:45.770 are real concerns. 505 00:24:45.770 --> 00:24:47.830 The other thing is that there is 506 00:24:47.830 --> 00:24:50.790 a lack of understanding of the unique stressors 507 00:24:50.790 --> 00:24:52.930 that immigrants go through. 508 00:24:52.930 --> 00:24:55.170 All the issues of acculturation, 509 00:24:55.170 --> 00:24:56.890 all the issues that have to do with 510 00:24:56.890 --> 00:24:59.750 the living circumstances of immigrants 511 00:24:59.750 --> 00:25:03.510 are so unique, and I think it's an area 512 00:25:03.510 --> 00:25:05.910 that we need to train more people 513 00:25:05.910 --> 00:25:08.910 so they can really understand and talk 514 00:25:08.910 --> 00:25:11.050 to their clients, you know, like, 515 00:25:11.050 --> 00:25:13.210 we know about what you're talking about. 516 00:25:13.210 --> 00:25:15.430 There's also time limitations. 517 00:25:15.430 --> 00:25:18.030 Actually, we did some work on trying to see 518 00:25:18.030 --> 00:25:21.210 what patients value, and it's really interesting 519 00:25:21.210 --> 00:25:24.610 because one of the differences I've even presented here. 520 00:25:24.610 --> 00:25:26.890 But one of the big differences we find 521 00:25:26.890 --> 00:25:30.470 between white, Latinos, and African Americans, 522 00:25:30.470 --> 00:25:33.150 is that minority people value time 523 00:25:33.150 --> 00:25:34.990 while whites value more, how much 524 00:25:34.990 --> 00:25:37.373 it's going to cost me. 525 00:25:37.373 --> 00:25:39.793 But isn't it interesting that time 526 00:25:39.793 --> 00:25:43.053 is the big, if you tell people you're going to 527 00:25:43.053 --> 00:25:47.453 come for 16 sessions, they go like, not a chance. 528 00:25:47.453 --> 00:25:49.633 So I was telling Maria that we have now 529 00:25:49.633 --> 00:25:52.873 a clinical trial, which by the way, Judy, 530 00:25:52.873 --> 00:25:55.493 that's here, is one of the clinicians, 531 00:25:55.493 --> 00:25:57.073 so she can tell you more about it, 532 00:25:57.073 --> 00:25:59.233 but one of the things we do now, 533 00:25:59.233 --> 00:26:01.833 is we tell people it's 10 sessions. 534 00:26:01.833 --> 00:26:04.433 And if people say no way, no way I'm going 535 00:26:04.433 --> 00:26:08.153 to 10 sessions, we go, how about if you try two? 536 00:26:08.153 --> 00:26:11.443 Try two, and if you don't like it, you're done. 537 00:26:11.733 --> 00:26:14.333 But try two, so it's a different concept 538 00:26:14.333 --> 00:26:16.093 of you have to have a commitment, 539 00:26:16.093 --> 00:26:19.173 a lifetime commitment to treatment. 540 00:26:19.173 --> 00:26:22.233 Because people see time as something 541 00:26:22.233 --> 00:26:24.473 so serious and of the essence. 542 00:26:24.473 --> 00:26:27.073 The other thing is, they have less access 543 00:26:27.073 --> 00:26:29.333 to prescription medications. 544 00:26:29.333 --> 00:26:32.173 And one of the things you better find out 545 00:26:32.173 --> 00:26:34.833 is what are they taking, because believe me, 546 00:26:34.833 --> 00:26:37.133 one of the biggest problems we're finding 547 00:26:37.133 --> 00:26:41.273 in minority communities is benzodiazepines. 548 00:26:41.273 --> 00:26:45.113 People are taking benzodiazepines like there's no tomorrow. 549 00:26:45.113 --> 00:26:48.573 And it's a big, big problem, as a recent JAMA 550 00:26:48.573 --> 00:26:50.073 article pointed out. 551 00:26:50.073 --> 00:26:52.373 People are just trying benzodiazepines 552 00:26:52.373 --> 00:26:54.693 as a way to cope. 553 00:26:54.693 --> 00:26:57.633 The other issue we're finding, it's very hard 554 00:26:57.633 --> 00:27:00.533 to convince some of this immigrant populations 555 00:27:00.533 --> 00:27:02.574 that self-care is important. 556 00:27:02.574 --> 00:27:04.974 That if you can't take care of yourself, 557 00:27:04.974 --> 00:27:06.794 you can't take care of your children, 558 00:27:06.794 --> 00:27:09.374 you can't take care of your jobs, 559 00:27:09.374 --> 00:27:11.954 because they actually believe that they 560 00:27:11.954 --> 00:27:16.084 are of very low priority in the things that they're housing. 561 00:27:16.134 --> 00:27:18.294 They're being evicted from their homes. 562 00:27:18.294 --> 00:27:21.034 They have problems with their kids at school. 563 00:27:21.034 --> 00:27:24.774 They're having problems in terms of their domestic violence, 564 00:27:24.774 --> 00:27:28.634 and you're asking them to take time for themselves, 565 00:27:28.634 --> 00:27:31.654 and that seems like, no way. 566 00:27:31.654 --> 00:27:34.074 The other thing that we have is they typically 567 00:27:34.074 --> 00:27:36.214 have multiple jobs, so one of the problems 568 00:27:36.214 --> 00:27:39.274 we're seeing is people cannot tell you 569 00:27:39.274 --> 00:27:41.234 when they can see you. 570 00:27:41.234 --> 00:27:44.674 So the idea of an appointment does not 571 00:27:44.674 --> 00:27:47.334 become operant in this population. 572 00:27:47.334 --> 00:27:50.395 They get called in the morning and they are told 573 00:27:50.395 --> 00:27:52.895 that morning at what time they have to 574 00:27:52.895 --> 00:27:54.535 be in their jobs. 575 00:27:54.535 --> 00:27:56.595 So if you, if they have to choose 576 00:27:56.595 --> 00:27:59.315 between your appointment or their job, 577 00:27:59.315 --> 00:28:01.456 guess what's going to win? 578 00:28:01.456 --> 00:28:04.776 So the idea of making an appointment 579 00:28:04.776 --> 00:28:07.696 for next week, it's not operant. 580 00:28:07.696 --> 00:28:10.716 So what we do is, we actually accommodate 581 00:28:10.716 --> 00:28:13.256 to your time, and you call us and then 582 00:28:13.256 --> 00:28:16.426 we try to set you up that day if necessary. 583 00:28:16.656 --> 00:28:18.306 It's a very different approach. 584 00:28:19.456 --> 00:28:21.996 And then, they typically have to pay 585 00:28:21.996 --> 00:28:24.476 more out of pockets because they typically 586 00:28:24.476 --> 00:28:29.176 are underinsured, if they're in employer-based insurance. 587 00:28:29.176 --> 00:28:32.306 So they have to pay for more. 588 00:28:32.656 --> 00:28:37.296 We also see like I said, treatments are too long, 589 00:28:37.296 --> 00:28:41.116 they require a high level of health literacy, 590 00:28:41.116 --> 00:28:43.496 there are actually very few treatments 591 00:28:43.496 --> 00:28:48.496 that address non-language English, LEP, 592 00:28:48.516 --> 00:28:51.976 linguistic, people that don't have language 593 00:28:51.976 --> 00:28:53.996 English proficiency. 594 00:28:53.996 --> 00:28:55.696 So we have, one of the problems is, 595 00:28:55.696 --> 00:28:57.856 changing everything and being able 596 00:28:57.856 --> 00:29:01.176 to provide care in the language you speak. 597 00:29:01.176 --> 00:29:03.376 And let me tell you the importance of that. 598 00:29:03.376 --> 00:29:05.816 The IOM did a committee of what is 599 00:29:05.816 --> 00:29:08.516 the language you need to get good care. 600 00:29:08.516 --> 00:29:12.456 And unless you can speak English very well, 601 00:29:12.456 --> 00:29:16.356 very well, not well, very well, you should not 602 00:29:16.356 --> 00:29:20.136 be having your therapy in that language. 603 00:29:20.136 --> 00:29:22.356 Because there's obvious that there's problems 604 00:29:22.356 --> 00:29:25.536 in diagnosis, problems in treatment adherence, 605 00:29:25.536 --> 00:29:27.516 problems in misdiag-- 606 00:29:27.516 --> 00:29:28.896 You know, all sorts of problems 607 00:29:28.896 --> 00:29:30.796 that are going to happen if you're not 608 00:29:30.796 --> 00:29:33.536 able to speak the language very well. 609 00:29:33.536 --> 00:29:36.256 But ask people, how well is, how, 610 00:29:36.256 --> 00:29:38.276 what is the chance that they can get 611 00:29:38.276 --> 00:29:40.596 the treatment in their language, 612 00:29:40.596 --> 00:29:42.316 in their primary language. 613 00:29:42.316 --> 00:29:43.556 And I don't know if people have 614 00:29:43.556 --> 00:29:45.896 tried going to another country 615 00:29:45.896 --> 00:29:48.756 and translating in your mind, but if you 616 00:29:48.756 --> 00:29:53.116 translate in your mind, you sound very disorganized. 617 00:29:53.116 --> 00:29:55.396 And when you translate in your mind, 618 00:29:55.396 --> 00:29:57.756 something that's not your language, 619 00:29:57.756 --> 00:30:00.036 what you see is people, clinicians thinking, 620 00:30:00.036 --> 00:30:02.696 this person has a cognitive impairment. 621 00:30:02.696 --> 00:30:05.136 And they don't have a cognitive impairment, 622 00:30:05.136 --> 00:30:07.436 they're just translating in their own mind. 623 00:30:07.436 --> 00:30:10.196 Or people saying, this person is so disorganized. 624 00:30:10.196 --> 00:30:13.756 They have a real big problem in disorganization. 625 00:30:13.756 --> 00:30:16.595 But if you have to think and translate 626 00:30:16.595 --> 00:30:19.888 and repeat back, imagine how hard it is. 627 00:30:20.218 --> 00:30:21.808 Imagine how hard it is. 628 00:30:22.118 --> 00:30:24.337 I tell people I fight with my, when I fight 629 00:30:24.337 --> 00:30:26.557 with my husband, it takes me double the time. 630 00:30:26.557 --> 00:30:27.438 (laughter) 631 00:30:27.438 --> 00:30:29.718 Because I have to think about what I want to say, 632 00:30:29.718 --> 00:30:31.838 and then say it in English, and it's 633 00:30:31.838 --> 00:30:33.498 really more complicated. 634 00:30:33.498 --> 00:30:36.138 And by the time you say it, it doesn't sound the same. 635 00:30:36.138 --> 00:30:38.457 I tell him, he's at an advantage. 636 00:30:38.457 --> 00:30:41.798 But he says no, I'm still at an advantage fighting. 637 00:30:41.798 --> 00:30:43.287 So... 638 00:30:43.517 --> 00:30:46.617 I think the other thing is, we have a lot of things 639 00:30:46.617 --> 00:30:49.678 that people, when they are talking in treatment, 640 00:30:49.678 --> 00:30:52.798 are things that you might miss, like things about 641 00:30:52.798 --> 00:30:55.978 social mobility, or remittances. 642 00:30:55.978 --> 00:30:58.417 How you have to send money to your country. 643 00:30:58.417 --> 00:31:01.238 Or how you're taking care of your grandmother, 644 00:31:01.238 --> 00:31:03.778 the aunt, and the other, and you're only 645 00:31:03.778 --> 00:31:06.138 15 years old and you're taking care 646 00:31:06.138 --> 00:31:07.898 of a lot of family. 647 00:31:07.898 --> 00:31:10.618 You have to talk about separation. 648 00:31:10.618 --> 00:31:13.038 The issue of the narrative of separation, 649 00:31:13.038 --> 00:31:17.757 we're now doing some help for the (unclear) 650 00:31:17.757 --> 00:31:19.897 Cambridge School system, who had 800 651 00:31:19.897 --> 00:31:23.478 unaccompanied minors in the last two years. 652 00:31:23.478 --> 00:31:28.018 And the issues, teachers are, you know, dying, 653 00:31:28.018 --> 00:31:30.458 because suddenly these kids come, 654 00:31:30.458 --> 00:31:34.678 they're 12, 10, and they're acting as adults 655 00:31:34.678 --> 00:31:37.377 and they don't want to be treated as children, 656 00:31:37.377 --> 00:31:39.597 because they've lived on the trains 657 00:31:39.597 --> 00:31:42.398 on their own for two years, and this person 658 00:31:42.398 --> 00:31:44.498 wants to treat me like a 10-year-old? 659 00:31:44.498 --> 00:31:45.978 Is she kidding me? 660 00:31:45.978 --> 00:31:47.897 And so, all the problems that you have 661 00:31:47.897 --> 00:31:50.877 of this separations and trauma 662 00:31:50.877 --> 00:31:53.778 are not things that people can confront. 663 00:31:53.778 --> 00:31:57.297 The other issue we're having is language barriers. 664 00:31:57.297 --> 00:32:00.858 Language barriers really are problematic 665 00:32:00.858 --> 00:32:03.097 for therapeutic alliance. 666 00:32:03.097 --> 00:32:06.238 We've actually done some work, which I think 667 00:32:06.238 --> 00:32:09.937 it's really interesting, coding the communication 668 00:32:09.937 --> 00:32:14.218 that goes on where the diet is a different diet. 669 00:32:14.218 --> 00:32:17.918 That is, if you're Latino and your provider's Latino, 670 00:32:17.918 --> 00:32:21.518 versus if you're white and your provider is Latino, 671 00:32:21.518 --> 00:32:25.258 versus your provider is Latino and you're white, 672 00:32:25.258 --> 00:32:27.818 you know all the combinations. 673 00:32:27.818 --> 00:32:29.858 And I can tell you, you won't believe it, 674 00:32:29.858 --> 00:32:33.658 but language is very different in those diets. 675 00:32:33.658 --> 00:32:36.579 How people spend the time, how people 676 00:32:36.579 --> 00:32:39.339 use the communication, how they use 677 00:32:39.339 --> 00:32:44.199 issues of warmth, affect, interpersonal dynamics 678 00:32:44.199 --> 00:32:47.139 in that communication is very very different 679 00:32:47.139 --> 00:32:49.699 depending on the composition of the diet. 680 00:32:49.699 --> 00:32:52.459 And these are things that people don't understand, 681 00:32:52.459 --> 00:32:55.679 people say, well why are people so dissatisfied 682 00:32:55.679 --> 00:32:57.759 with the communication with their providers? 683 00:32:57.759 --> 00:33:01.579 Why are Latinos and African Americans so dissatisfied? 684 00:33:01.579 --> 00:33:05.299 But it's that the communication is different in those diets. 685 00:33:05.299 --> 00:33:08.419 There's also issues about misinterpretations, 686 00:33:08.419 --> 00:33:13.359 I mean, we published two articles on misinterpretations 687 00:33:13.359 --> 00:33:15.099 in behavioral health care. 688 00:33:15.099 --> 00:33:17.539 And I can tell you they're worth seeing. 689 00:33:17.539 --> 00:33:20.899 Amy Bauer is the first author. 690 00:33:20.899 --> 00:33:23.399 But it's basically showing you the problems 691 00:33:23.399 --> 00:33:25.819 that there are when the providers 692 00:33:25.819 --> 00:33:27.799 don't speak the same language and 693 00:33:27.799 --> 00:33:30.019 it's through interpreter's services. 694 00:33:30.019 --> 00:33:32.379 And we have all types of interpreters. 695 00:33:32.379 --> 00:33:36.099 Great interpreters, some average interpreters, 696 00:33:36.099 --> 00:33:38.259 and a lot of lousy interpreters. 697 00:33:38.259 --> 00:33:41.859 And you would be amazed the missing 698 00:33:41.859 --> 00:33:44.619 of information that happens when people 699 00:33:44.619 --> 00:33:47.479 cannot interpret correctly. 700 00:33:47.479 --> 00:33:49.339 So what are some of the key findings 701 00:33:49.339 --> 00:33:50.799 that we find? 702 00:33:50.799 --> 00:33:54.459 So we did a paper, and this is a shocking paper, 703 00:33:54.459 --> 00:33:57.659 I think it was really interesting, where we actually, 704 00:33:57.659 --> 00:33:59.919 I'm not going to go through the whole paper, 705 00:33:59.919 --> 00:34:02.699 but what we find is that neighborhood clinics 706 00:34:02.699 --> 00:34:07.059 in the area where people live are really critical. 707 00:34:07.059 --> 00:34:10.019 For example, Latinos, if you think 708 00:34:10.019 --> 00:34:11.839 in terms of disparities reduction. 709 00:34:11.839 --> 00:34:14.459 Latinos utilize community health centers 710 00:34:14.459 --> 00:34:19.459 700, 700 percent higher than whites. 711 00:34:20.019 --> 00:34:23.779 And African Americans use it 550 more 712 00:34:23.779 --> 00:34:26.719 in percentage than whites. 713 00:34:26.719 --> 00:34:30.160 So community clinics are so central to the lives 714 00:34:30.160 --> 00:34:32.800 of these people that having community clinics 715 00:34:32.800 --> 00:34:36.700 in their areas can make a huge difference. 716 00:34:36.860 --> 00:34:40.161 However, we actually did simulations 717 00:34:40.161 --> 00:34:43.901 using well, what if you put a community health clinic 718 00:34:43.901 --> 00:34:45.701 in the neighborhood. 719 00:34:45.701 --> 00:34:50.201 And what if you gave universal health insurance to people. 720 00:34:50.201 --> 00:34:53.560 And guess what, the sad, sad thing is that 721 00:34:53.560 --> 00:34:57.501 still, 59 to 66 percent of people 722 00:34:57.501 --> 00:35:00.421 would still not go to care. 723 00:35:00.421 --> 00:35:02.721 Would still not go to care. 724 00:35:02.721 --> 00:35:06.201 And what we're thinking is why would that be? 725 00:35:06.201 --> 00:35:07.741 Why would that be? 726 00:35:07.741 --> 00:35:11.141 And I think one of the biggest issues that we have 727 00:35:11.141 --> 00:35:14.801 is the patient-provider interaction. 728 00:35:14.801 --> 00:35:17.461 I think we've been doing a lousy job 729 00:35:17.461 --> 00:35:20.941 with our minorities in the system of care, 730 00:35:20.941 --> 00:35:23.991 and not necessarily having a good experience. 731 00:35:24.921 --> 00:35:27.221 So one of the things that we, I'm going to 732 00:35:27.221 --> 00:35:29.080 aggregate, I'm going to show you now 733 00:35:29.080 --> 00:35:30.981 some of the work that we're doing, 734 00:35:30.981 --> 00:35:34.201 is that people should leave the clinic walls. 735 00:35:34.201 --> 00:35:36.560 That if we are going to be effective 736 00:35:36.560 --> 00:35:37.741 in what we're doing in terms of 737 00:35:37.741 --> 00:35:40.001 disparities reduction, we have to go 738 00:35:40.001 --> 00:35:42.141 beyond the clinic walls. 739 00:35:42.141 --> 00:35:44.341 We can't wait for people to come to us. 740 00:35:44.341 --> 00:35:46.801 By the time they come to us, they are 741 00:35:46.801 --> 00:35:49.400 so disempowered, and so complex 742 00:35:49.400 --> 00:35:52.141 in their problems, that it's very little 743 00:35:52.141 --> 00:35:53.421 what we can do. 744 00:35:53.421 --> 00:35:55.401 So I think going outside the clinic walls 745 00:35:55.401 --> 00:35:57.560 might be very necessary. 746 00:35:57.560 --> 00:35:59.661 And I'm happy to later on discuss this. 747 00:35:59.661 --> 00:36:03.441 The other thing is that the safety net pools 748 00:36:03.441 --> 00:36:08.441 are being eroded so quickly, that people 749 00:36:08.521 --> 00:36:13.161 I think, are going to because we are taking 750 00:36:13.161 --> 00:36:15.761 some of those funds out, I'm very worried 751 00:36:15.761 --> 00:36:17.760 that this, our people are not going to be 752 00:36:17.760 --> 00:36:21.800 included in many of the care. 753 00:36:21.800 --> 00:36:25.640 Very quickly, we know that supply of providers 754 00:36:25.640 --> 00:36:28.640 can be a great source for people to access care. 755 00:36:28.640 --> 00:36:32.140 The more provider availability that we have, 756 00:36:32.140 --> 00:36:36.301 the more likelihood people are likely to use care. 757 00:36:36.301 --> 00:36:37.761 This is what we're trying. 758 00:36:37.761 --> 00:36:39.441 I'm going to go very quickly to tell you 759 00:36:39.441 --> 00:36:41.200 the things we're trying. 760 00:36:41.200 --> 00:36:42.800 So, we think that you need to do 761 00:36:42.800 --> 00:36:45.161 multi-system interventions. 762 00:36:45.161 --> 00:36:49.022 All the way from patient-provider interaction, 763 00:36:49.022 --> 00:36:50.542 and I'll tell you a little bit about what 764 00:36:50.542 --> 00:36:52.782 we are doing about that, improving 765 00:36:52.782 --> 00:36:55.642 the patient-provider interaction. 766 00:36:55.642 --> 00:36:57.502 I think you need to do interventions 767 00:36:57.502 --> 00:37:00.442 in clinical care to make sure that you increase 768 00:37:00.442 --> 00:37:02.842 the evidence based interactions 769 00:37:02.842 --> 00:37:05.282 and clinical care that we provide. 770 00:37:05.282 --> 00:37:09.442 So that there is competency in evidence-based care, 771 00:37:09.442 --> 00:37:14.082 but also in helping work with providers, PCPs 772 00:37:14.082 --> 00:37:16.942 so that they can actually enter people in care. 773 00:37:16.942 --> 00:37:19.162 And then I think we have to do interventions 774 00:37:19.162 --> 00:37:20.502 at the community. 775 00:37:20.502 --> 00:37:23.662 We're doing a lot of work, doing interventions 776 00:37:23.662 --> 00:37:26.382 in community agencies where we bring 777 00:37:26.382 --> 00:37:28.922 the providers to the community agencies 778 00:37:28.922 --> 00:37:32.822 to provide the care before people get very sick. 779 00:37:32.822 --> 00:37:34.702 So it's actually training people 780 00:37:34.702 --> 00:37:38.422 in the community agencies to be the people 781 00:37:38.422 --> 00:37:41.842 that provide the first line of services 782 00:37:41.842 --> 00:37:44.262 and refer cases that are more severe 783 00:37:44.262 --> 00:37:46.822 to actually professionals as a way 784 00:37:46.822 --> 00:37:49.702 to try to intervene with bringing in 785 00:37:49.702 --> 00:37:53.082 community capacity and building community capacity 786 00:37:53.082 --> 00:37:55.902 to make sure that people are serviced early on. 787 00:37:55.902 --> 00:37:58.202 And then we have, I think we have to do more 788 00:37:58.202 --> 00:38:00.602 in policy and market forces, especially 789 00:38:00.602 --> 00:38:03.602 market forces, we're talking more about policy, 790 00:38:03.602 --> 00:38:05.502 but I don't think we have done enough 791 00:38:05.502 --> 00:38:08.702 market forces in terms of trying to work 792 00:38:08.702 --> 00:38:12.182 with how can we get insurers to do a better job 793 00:38:12.182 --> 00:38:14.052 of what they're doing. 794 00:38:15.082 --> 00:38:17.742 So why are clinicians failing to engage 795 00:38:17.742 --> 00:38:20.192 and retain diverse patients? 796 00:38:20.562 --> 00:38:22.422 I think part of the problem is, 797 00:38:22.422 --> 00:38:24.542 they're really unaware of the patients 798 00:38:24.542 --> 00:38:28.542 cultural interpretations about what they're talking. 799 00:38:28.542 --> 00:38:31.822 So when they define the problem for the patient, 800 00:38:31.822 --> 00:38:34.802 there's very little overlap between 801 00:38:34.802 --> 00:38:37.202 how that patient defines the problem 802 00:38:37.202 --> 00:38:40.102 and how the provider defines the problem. 803 00:38:40.102 --> 00:38:41.982 And I think if you don't have a good overlap 804 00:38:41.982 --> 00:38:45.902 at the startup point, there's very limited chance 805 00:38:45.902 --> 00:38:47.302 that you're going to make it. 806 00:38:47.302 --> 00:38:50.482 Minorities who perceive that clinicians 807 00:38:50.482 --> 00:38:53.682 do not understand their cultural views 808 00:38:53.682 --> 00:38:56.082 are seven times at higher odds 809 00:38:56.082 --> 00:38:59.122 of ending treatment prematurely. 810 00:38:59.122 --> 00:39:01.622 So this is a basic, basic thing, 811 00:39:01.622 --> 00:39:04.822 and it's not necessarily only cultural formulation, 812 00:39:04.822 --> 00:39:07.842 it's actually making sure that when you use, 813 00:39:07.842 --> 00:39:11.242 when you're defining the problem for that Asian, 814 00:39:11.242 --> 00:39:14.082 that you're using the same words, that you're 815 00:39:14.082 --> 00:39:17.442 explaining the problem from the same narrative, 816 00:39:17.442 --> 00:39:20.202 that you're using the situational examples 817 00:39:20.202 --> 00:39:23.542 that that patient says that they're having, 818 00:39:23.542 --> 00:39:27.422 so there's a big overlap in that narrative 819 00:39:27.422 --> 00:39:29.462 and the narrative of the patient. 820 00:39:29.462 --> 00:39:31.402 Because if not, you're going to lose them. 821 00:39:31.402 --> 00:39:34.202 So this is an example of one of the interventions 822 00:39:34.202 --> 00:39:37.282 we have done, it's called a decida intervention, 823 00:39:37.282 --> 00:39:40.142 and it's an intervention to try to make sure 824 00:39:40.142 --> 00:39:42.822 that patients can tell you about 825 00:39:42.822 --> 00:39:47.122 what they want in care, what they want in care, 826 00:39:47.122 --> 00:39:51.662 and it's their agenda that gets serviced in care. 827 00:39:51.662 --> 00:39:54.122 It's called decida, and basically it's 828 00:39:54.122 --> 00:39:58.422 a patient activation and self-management intervention. 829 00:39:58.422 --> 00:40:01.482 And the general idea is, you help patients 830 00:40:01.482 --> 00:40:05.422 to formulate questions to their provider 831 00:40:05.422 --> 00:40:08.182 as a way to make sure that they say 832 00:40:08.182 --> 00:40:10.942 what's of interest to them, what they want 833 00:40:10.942 --> 00:40:14.062 to cover in the session, what are their questions 834 00:40:14.062 --> 00:40:18.322 that they have, so we teach them how to formulate questions, 835 00:40:18.322 --> 00:40:21.562 how to focus on key decisions, and this 836 00:40:21.562 --> 00:40:23.402 is a very big change. 837 00:40:23.402 --> 00:40:25.642 Because people think about care 838 00:40:25.642 --> 00:40:29.062 as people come and vent out, right? 839 00:40:29.062 --> 00:40:32.603 But if you think about care as key decisions 840 00:40:32.603 --> 00:40:35.163 in your life, in your treatment, 841 00:40:35.163 --> 00:40:38.263 in your relationships, and your options, 842 00:40:38.263 --> 00:40:40.163 what are your options? 843 00:40:40.163 --> 00:40:42.343 What are your options that you have 844 00:40:42.343 --> 00:40:44.703 in those areas, that's actually 845 00:40:44.703 --> 00:40:46.783 empowering to the patient. 846 00:40:46.783 --> 00:40:48.423 That really activates the patient 847 00:40:48.423 --> 00:40:49.943 and gives them a source. 848 00:40:49.943 --> 00:40:52.443 And then how to manage disease, 849 00:40:52.443 --> 00:40:53.483 their own disease. 850 00:40:53.483 --> 00:40:56.083 The more people know about their illness, 851 00:40:56.083 --> 00:40:57.683 the better they can do questions 852 00:40:57.683 --> 00:41:00.903 and be activated in their care. 853 00:41:00.903 --> 00:41:03.563 So, we, I'm not going to cover this, 854 00:41:03.563 --> 00:41:06.803 but we actually do only three trainings, 855 00:41:06.803 --> 00:41:09.463 they're 45 minutes by a care manager, 856 00:41:09.463 --> 00:41:11.163 someone that's trained in this, 857 00:41:11.163 --> 00:41:14.863 and we teach the, the care manager 858 00:41:14.863 --> 00:41:17.543 teaches the patient how to do questions 859 00:41:17.543 --> 00:41:21.723 and we've actually shown that it works very well. 860 00:41:21.723 --> 00:41:24.063 We've actually published saying it 861 00:41:24.063 --> 00:41:25.043 works very well. 862 00:41:25.043 --> 00:41:27.464 Let me tell you what happened, however. 863 00:41:27.464 --> 00:41:32.464 We only got somewhat, not really strong effect, 864 00:41:32.624 --> 00:41:35.104 and we went back and did focus groups 865 00:41:35.104 --> 00:41:36.664 with patients trying to figure out 866 00:41:36.664 --> 00:41:38.464 well, what's going on? 867 00:41:38.464 --> 00:41:40.624 Well what we found is, providers 868 00:41:40.624 --> 00:41:43.584 were not happy with activating their patients. 869 00:41:43.584 --> 00:41:44.184 (laughter) 870 00:41:44.184 --> 00:41:46.064 They really don't like people that come 871 00:41:46.064 --> 00:41:48.204 with their sessions, to their sessions 872 00:41:48.204 --> 00:41:51.464 with a list of questions, priorities, 873 00:41:51.464 --> 00:41:53.684 and want to discuss these things. 874 00:41:53.684 --> 00:41:56.104 It was really, really challenging. 875 00:41:56.104 --> 00:41:58.805 So, we started getting people saying, 876 00:41:58.805 --> 00:42:01.585 what are you doing with my patients? 877 00:42:01.585 --> 00:42:05.065 They're asking me what diagnosis do they have, 878 00:42:05.065 --> 00:42:06.485 they've been in care for 10 years, 879 00:42:06.485 --> 00:42:08.265 this is the first time they've asked me 880 00:42:08.265 --> 00:42:09.625 what diagnosis they have. 881 00:42:09.625 --> 00:42:13.285 Why I am not in this clinical trial. 882 00:42:13.285 --> 00:42:15.485 Why are you giving me this medication? 883 00:42:15.485 --> 00:42:17.765 I found out that there's three other types 884 00:42:17.765 --> 00:42:20.165 of medications that have less side effects 885 00:42:20.165 --> 00:42:22.865 and now you're bringing me this medication. 886 00:42:22.865 --> 00:42:25.765 So, the thing we had is providers 887 00:42:25.765 --> 00:42:28.305 were not necessarily that happy, 888 00:42:28.305 --> 00:42:29.905 and in fact some providers actually 889 00:42:29.905 --> 00:42:31.905 were very unhappy. 890 00:42:31.905 --> 00:42:36.825 So now we're actually doing intervention for providers. 891 00:42:36.825 --> 00:42:41.825 And I can tell you, doing patients is a piece of cake. 892 00:42:44.085 --> 00:42:46.885 Try doing interventions with providers. 893 00:42:46.885 --> 00:42:49.785 This is a coaching that we give providers. 894 00:42:49.785 --> 00:42:51.485 And what we did with providers, 895 00:42:51.485 --> 00:42:54.185 is we audiotaped their sessions. 896 00:42:54.185 --> 00:42:55.765 And give them feedback. 897 00:42:55.765 --> 00:42:58.365 By coding their sessions and giving them 898 00:42:58.365 --> 00:43:02.145 direct feedback of what they're doing. 899 00:43:02.145 --> 00:43:06.465 And believe me, they are like, oh my god. 900 00:43:06.465 --> 00:43:08.945 Because you send them a page and then 901 00:43:08.945 --> 00:43:10.845 you call them on the phone, and you tell them 902 00:43:10.845 --> 00:43:12.665 okay, look at your feedback. 903 00:43:12.665 --> 00:43:15.545 And it's a life-changing experience. 904 00:43:15.545 --> 00:43:17.105 You could say. 905 00:43:17.105 --> 00:43:20.785 So, I think patient activation and self-management 906 00:43:20.785 --> 00:43:24.365 is critical to help patients have their own voice 907 00:43:24.365 --> 00:43:26.665 and get the care that they want, 908 00:43:26.665 --> 00:43:29.465 not the care that you're planning to give them. 909 00:43:29.465 --> 00:43:32.805 Which is a big change of alternatives. 910 00:43:32.805 --> 00:43:37.125 I think we need to test good evidence-based care, 911 00:43:37.125 --> 00:43:40.365 that people can receive in a low-resource setting. 912 00:43:40.365 --> 00:43:42.425 I think we can't think that people are going to 913 00:43:42.425 --> 00:43:45.465 go to NGH, or they're going to go, we have to think 914 00:43:45.465 --> 00:43:49.505 of what can we give that's low-resource, high quality? 915 00:43:49.505 --> 00:43:51.985 High quality, good care. 916 00:43:51.985 --> 00:43:53.465 And that's what we're trying to do, 917 00:43:53.465 --> 00:43:56.025 make sure that they get really good quality 918 00:43:56.025 --> 00:43:59.025 and that clinicians have a back up, 919 00:43:59.025 --> 00:44:02.065 a real good back up, so you get stuck, 920 00:44:02.065 --> 00:44:06.065 you get the resources and the supervision needed. 921 00:44:06.065 --> 00:44:09.425 The next thing I wanted to tell you is, 922 00:44:09.425 --> 00:44:12.146 trying to make sure that our interventions 923 00:44:12.146 --> 00:44:15.666 are actually interventions that are tailored, 924 00:44:15.666 --> 00:44:18.226 culturally tailored to that population. 925 00:44:18.226 --> 00:44:22.906 So what we're doing is, this is a depression intervention. 926 00:44:22.906 --> 00:44:26.206 It's very short, it's only six sessions. 927 00:44:26.206 --> 00:44:28.806 Actually, Judy again was part of our 928 00:44:28.806 --> 00:44:32.886 spectacular clinician team of social workers 929 00:44:32.886 --> 00:44:34.806 and psychologists that were trained 930 00:44:34.806 --> 00:44:37.546 on this intervention, it is very short, 931 00:44:37.546 --> 00:44:38.909 as you can imagine. 932 00:44:38.909 --> 00:44:41.309 And then the other thing we tested it, 933 00:44:41.309 --> 00:44:44.009 can it be given by phone? 934 00:44:44.009 --> 00:44:47.609 So we randomized to having the intervention 935 00:44:47.609 --> 00:44:49.889 by phone, or in person. 936 00:44:49.889 --> 00:44:53.629 And the end story is that basically, 937 00:44:53.629 --> 00:44:56.929 so we did, before I tell you how we actually did 938 00:44:56.929 --> 00:45:00.589 the cultural adaptation, we adapted 939 00:45:00.589 --> 00:45:04.909 the training in terms of language, culture and context. 940 00:45:04.909 --> 00:45:08.889 So we made it very, very tailored to where they are. 941 00:45:08.889 --> 00:45:11.389 We looked at issues that have meanings 942 00:45:11.389 --> 00:45:13.109 and values to people. 943 00:45:13.109 --> 00:45:16.309 So we use analogies that people would understand 944 00:45:16.309 --> 00:45:21.309 as having meaning in their country. 945 00:45:21.369 --> 00:45:26.090 We actually train master-level social workers 946 00:45:26.090 --> 00:45:29.810 and psychologists a six to eight session, 947 00:45:29.810 --> 00:45:34.710 and it's actually committed behavioral training. 948 00:45:34.710 --> 00:45:36.890 It's actually information on depression 949 00:45:36.890 --> 00:45:38.950 and motivational interviewing. 950 00:45:38.950 --> 00:45:43.230 But one key issue, one key issue that we added 951 00:45:43.230 --> 00:45:46.490 is care management services for other problems. 952 00:45:46.490 --> 00:45:49.530 Because if you think about it, behavioral health 953 00:45:49.530 --> 00:45:52.030 is only one aspect of their life. 954 00:45:52.030 --> 00:45:53.270 These are people that have problems 955 00:45:53.270 --> 00:45:56.330 with housing, with legal authorities, 956 00:45:56.330 --> 00:45:58.470 with you name it, they have it. 957 00:45:58.470 --> 00:46:01.110 So this is a care manager that would serve 958 00:46:01.110 --> 00:46:02.670 for the other things. 959 00:46:02.670 --> 00:46:06.510 I want to show you how we change the manual 960 00:46:06.510 --> 00:46:08.850 because instead of showing people 961 00:46:08.850 --> 00:46:12.010 things that were very wordy, and very like 962 00:46:12.010 --> 00:46:16.150 conceptually driven, we use a lot of visual images. 963 00:46:16.150 --> 00:46:18.730 To convey the messages, and make it, 964 00:46:18.730 --> 00:46:20.250 like negative thoughts. 965 00:46:20.250 --> 00:46:22.690 When we pilot-tested the intervention, 966 00:46:22.690 --> 00:46:24.730 people were like, well I really like 967 00:46:24.730 --> 00:46:26.630 your intervention, but I never got 968 00:46:26.630 --> 00:46:28.450 what was negative thoughts. 969 00:46:28.450 --> 00:46:30.110 And that's like critical. 970 00:46:30.110 --> 00:46:31.550 If you don't understand negative thoughts, 971 00:46:31.550 --> 00:46:33.850 it's the big piece of the intervention. 972 00:46:33.850 --> 00:46:36.850 So we have to create images to tell people 973 00:46:36.850 --> 00:46:39.010 about negative thoughts. 974 00:46:39.010 --> 00:46:41.690 And then we did a lot for health literacy, 975 00:46:41.690 --> 00:46:45.030 because actually, 30 percent of our sample 976 00:46:45.030 --> 00:46:50.030 actually had less than sixth grade education. 977 00:46:50.130 --> 00:46:52.931 Okay, so one of the things you have to think about, 978 00:46:52.931 --> 00:46:54.571 and we actually had like three cases 979 00:46:54.571 --> 00:46:56.971 where people didn't read at all. 980 00:46:56.971 --> 00:46:59.471 So the idea of giving homework, 981 00:46:59.471 --> 00:47:00.971 take this and read it in your house 982 00:47:00.971 --> 00:47:03.591 and come back, was non-existent. 983 00:47:03.591 --> 00:47:05.991 So clinicians had to think very carefully 984 00:47:05.991 --> 00:47:07.531 what they do. 985 00:47:07.531 --> 00:47:11.151 Basically, we found that people that were 986 00:47:11.151 --> 00:47:13.751 in the phone were much more likely 987 00:47:13.751 --> 00:47:18.531 to initiate care than people that were in person. 988 00:47:18.531 --> 00:47:22.031 So given the option of having the intervention by phone 989 00:47:22.031 --> 00:47:25.351 really made a big difference in initiating care. 990 00:47:25.351 --> 00:47:27.691 We lost 21.5 percent of people 991 00:47:27.691 --> 00:47:30.411 that never came to care compared to only 10 percent 992 00:47:30.411 --> 00:47:32.251 when we used the phone. 993 00:47:32.251 --> 00:47:33.811 So you make a big difference. 994 00:47:33.811 --> 00:47:38.111 But we actually found not only meaningful reductions 995 00:47:38.111 --> 00:47:40.491 in depression, but we actually found 996 00:47:40.491 --> 00:47:44.051 meaningful reductions in anxiety symptoms, too. 997 00:47:44.051 --> 00:47:48.391 So it's one of these types of interventions 998 00:47:48.391 --> 00:47:53.041 that's good for depression and for anxiety. 999 00:47:54.132 --> 00:47:56.042 So this is the story. 1000 00:47:56.412 --> 00:47:58.252 One of the things that people loved 1001 00:47:58.252 --> 00:48:00.152 is the idea that they could take 1002 00:48:00.152 --> 00:48:03.852 the intervention on their phone in the bus 1003 00:48:03.852 --> 00:48:06.692 going to work, they could take it, 1004 00:48:06.692 --> 00:48:09.092 believe it or not, in their car, 1005 00:48:09.092 --> 00:48:10.432 driving to work. 1006 00:48:10.432 --> 00:48:12.192 People could take it at lunch, 1007 00:48:12.192 --> 00:48:14.612 in their lunch hour, so it took away 1008 00:48:14.612 --> 00:48:19.182 from the demands of having an intervention. 1009 00:48:19.532 --> 00:48:22.412 I want to finish by the National Institute of Health, 1010 00:48:22.412 --> 00:48:25.552 I really, really, I'm very worried 1011 00:48:25.552 --> 00:48:28.482 on how we're focusing, oops. 1012 00:48:29.992 --> 00:48:34.792 We're focusing so much on the biological body 1013 00:48:34.792 --> 00:48:37.692 and so little on the social component 1014 00:48:37.692 --> 00:48:39.892 of people's lives and how this 1015 00:48:39.892 --> 00:48:42.672 is going to have terrible repercussions. 1016 00:48:42.672 --> 00:48:46.672 So we're focused on illness, not on wellness, 1017 00:48:46.672 --> 00:48:49.032 and we're really losing the point 1018 00:48:49.032 --> 00:48:52.802 of focusing on how can we view this? 1019 00:48:53.632 --> 00:48:57.972 I also think that we're still on the basic 1020 00:48:57.972 --> 00:49:00.452 science of the brain, but there's 1021 00:49:00.452 --> 00:49:03.802 very little interest for services and treatments. 1022 00:49:03.972 --> 00:49:06.012 And given everything I've told you, 1023 00:49:06.012 --> 00:49:09.572 this is just, I think, a tragic thing 1024 00:49:09.572 --> 00:49:13.943 of why we don't improve in our service delivery. 1025 00:49:14.113 --> 00:49:16.373 So I think, rather than think of 1026 00:49:16.373 --> 00:49:19.133 clinical services, which I think are important, 1027 00:49:19.133 --> 00:49:23.273 I think we also have to move to community activation 1028 00:49:23.273 --> 00:49:25.893 and actually trying to get the prevention dollars 1029 00:49:25.893 --> 00:49:28.143 to serve our costs. 1030 00:49:29.434 --> 00:49:33.014 I think that the biggest problem we have 1031 00:49:33.014 --> 00:49:35.894 is that now the institutes are not spending 1032 00:49:35.894 --> 00:49:38.553 any money on adaptations, very little money 1033 00:49:38.553 --> 00:49:41.634 on adaptations, very very little money 1034 00:49:41.634 --> 00:49:44.834 on immigrant provider interactions, 1035 00:49:44.834 --> 00:49:48.013 and very little money on diagnosis 1036 00:49:48.013 --> 00:49:49.973 of multi-cultural populations so that 1037 00:49:49.973 --> 00:49:51.574 we can serve them right. 1038 00:49:51.574 --> 00:49:54.364 So to me this is a huge problem. 1039 00:49:54.553 --> 00:49:59.094 So, I think if you're lost, you're in good company. 1040 00:49:59.094 --> 00:50:01.934 Because we're all trying to figure out how 1041 00:50:01.934 --> 00:50:06.774 is it possible that there's not sufficient information 1042 00:50:06.774 --> 00:50:11.233 to try to improve the care for immigrant populations 1043 00:50:11.233 --> 00:50:13.924 given everything I've shown you. 1044 00:50:13.974 --> 00:50:18.134 So it's a call for all of you to advocate for what we need, 1045 00:50:18.134 --> 00:50:22.224 which is more on-service delivery to improve this. 1046 00:50:22.454 --> 00:50:26.834 So, I don't think we're seeing that the (unclear) phase 1047 00:50:26.834 --> 00:50:30.033 of addressing language, I don't think they're excluding 1048 00:50:30.033 --> 00:50:34.034 socio-cultural factors in thinking about the illness, 1049 00:50:34.034 --> 00:50:37.394 and who gets invited? 1050 00:50:37.394 --> 00:50:41.134 I mention this because who gets invited 1051 00:50:41.134 --> 00:50:43.874 to say what's important priority? 1052 00:50:43.874 --> 00:50:47.333 If I invite 20 neuroscientists to come to me 1053 00:50:47.333 --> 00:50:48.654 and tell me, what do you think 1054 00:50:48.654 --> 00:50:52.613 is the most important topics for mental health 1055 00:50:52.613 --> 00:50:55.234 today, guess what, you're going to get 1056 00:50:55.234 --> 00:50:57.434 neuroscience topics. 1057 00:50:57.434 --> 00:51:00.834 So we need to have more social workers 1058 00:51:00.834 --> 00:51:04.534 in the picture, saying how social context 1059 00:51:04.534 --> 00:51:07.594 is such an important aspect, and social conditions 1060 00:51:07.594 --> 00:51:10.734 are such an important context in life. 1061 00:51:10.734 --> 00:51:15.393 So I think future generations assigned the, 1062 00:51:15.393 --> 00:51:17.854 are going to say, how could well-meaning 1063 00:51:17.854 --> 00:51:20.934 and highly-educated researches working 1064 00:51:20.934 --> 00:51:23.193 in their usual circumstances, studying 1065 00:51:23.193 --> 00:51:25.814 diverse populations of patients, 1066 00:51:25.814 --> 00:51:28.074 create a pattern of results that appears 1067 00:51:28.074 --> 00:51:31.293 to be discriminatory and not well-suited 1068 00:51:31.293 --> 00:51:33.894 to represent their problems and solutions 1069 00:51:33.894 --> 00:51:37.254 to their mental health service needs? 1070 00:51:37.254 --> 00:51:38.654 So thank you. 1071 00:51:38.654 --> 00:51:40.765 (applause) 1072 00:51:48.055 --> 00:51:49.985 So I'm very happy to take questions. 1073 00:51:51.175 --> 00:51:52.185 Yes. 1074 00:51:52.715 --> 00:51:54.645 (inaudible question) 1075 00:52:10.755 --> 00:52:12.435 I completely agree. 1076 00:52:12.435 --> 00:52:15.755 But in between the transition, in between 1077 00:52:15.755 --> 00:52:17.995 the transition, I think it's really important 1078 00:52:17.995 --> 00:52:22.935 to train the work force that is now 1079 00:52:22.935 --> 00:52:26.595 on how to do a better patient-provider interaction. 1080 00:52:26.595 --> 00:52:29.935 Because I think, I mean, again, I think 1081 00:52:29.935 --> 00:52:31.595 it's very courageous by the way 1082 00:52:31.595 --> 00:52:34.435 of the clinicians that are willing to be audiotaped 1083 00:52:34.435 --> 00:52:36.215 and given feedback, I have to tell you, 1084 00:52:36.215 --> 00:52:38.715 I take my hat to them, because it's not easy 1085 00:52:38.715 --> 00:52:43.155 to lend yourself after maybe 30 years of practice 1086 00:52:43.155 --> 00:52:46.535 to have someone hear your tapes and give you feedback. 1087 00:52:46.535 --> 00:52:50.135 But I think that is a critical aspect 1088 00:52:50.135 --> 00:52:51.955 of improving our work force. 1089 00:52:51.955 --> 00:52:55.135 There's one person on the back, you , yeah. 1090 00:52:55.135 --> 00:52:56.175 And then I'll come here. 1091 00:52:56.175 --> 00:52:59.545 (inaudible question) 1092 00:53:02.315 --> 00:53:03.815 Sure, thanks. 1093 00:53:03.815 --> 00:53:07.135 She's asking if you want to get providers 1094 00:53:07.135 --> 00:53:09.135 out to community agencies, what type 1095 00:53:09.135 --> 00:53:11.725 of community agencies are you talking about? 1096 00:53:11.875 --> 00:53:13.835 So for example, for the elders, 1097 00:53:13.835 --> 00:53:16.495 we're actually going to elder services. 1098 00:53:16.495 --> 00:53:19.415 Community agencies that treat the elders. 1099 00:53:19.415 --> 00:53:21.175 And what we're doing is, we're working 1100 00:53:21.175 --> 00:53:23.655 right now with six community agencies 1101 00:53:23.655 --> 00:53:27.155 that serve elder, all ethnic minority elders. 1102 00:53:27.155 --> 00:53:30.775 And we're building capacity in those agencies 1103 00:53:30.775 --> 00:53:35.335 to provide behavioral health care of a person 1104 00:53:35.335 --> 00:53:38.275 trained there that we supervise 1105 00:53:38.275 --> 00:53:40.375 and provide the care, and the idea is 1106 00:53:40.375 --> 00:53:43.575 that we'll do that for the first two years, 1107 00:53:43.575 --> 00:53:45.635 and then the last three years is helping 1108 00:53:45.635 --> 00:53:48.495 the community keep doing it on their own, 1109 00:53:48.495 --> 00:53:52.185 sustaining and being able to get paid for it. 1110 00:53:52.515 --> 00:53:54.055 That's the strategy. 1111 00:53:54.055 --> 00:53:55.605 There was someone here, yes. 1112 00:53:55.795 --> 00:53:58.745 (inaudible question) 1113 00:54:26.956 --> 00:54:29.556 Yeah, that's a excellent question. 1114 00:54:29.556 --> 00:54:32.496 How about clinicians that speak the language 1115 00:54:32.496 --> 00:54:34.836 of the patient very well. 1116 00:54:34.836 --> 00:54:38.096 So the jury is out. 1117 00:54:38.096 --> 00:54:40.726 So we don't have an exact answer to this. 1118 00:54:41.056 --> 00:54:44.856 It seems that it varies more for some populations 1119 00:54:44.856 --> 00:54:46.366 than for others. 1120 00:54:46.776 --> 00:54:50.016 And we actually don't understand why is that. 1121 00:54:50.016 --> 00:54:54.156 So there's some evidence that it does matter 1122 00:54:54.156 --> 00:54:57.456 for certain groups more like, for example, 1123 00:54:57.456 --> 00:55:00.336 and I'll, the data that's out there suggests 1124 00:55:00.336 --> 00:55:04.476 that for Latinos, it's actually good enough. 1125 00:55:04.476 --> 00:55:07.496 But for other populations, it's not. 1126 00:55:07.496 --> 00:55:08.936 Like Asians. 1127 00:55:08.936 --> 00:55:11.096 They're not finding the same results 1128 00:55:11.096 --> 00:55:14.076 in the study that they have done on Asians. 1129 00:55:14.076 --> 00:55:15.776 Why is that? 1130 00:55:15.776 --> 00:55:18.756 I mean first of all, there's not tons of studies on this 1131 00:55:18.756 --> 00:55:23.756 to start, but the idea is maybe it's more difficult. 1132 00:55:24.016 --> 00:55:27.396 Because it's not only, I want to be clear about this, 1133 00:55:27.396 --> 00:55:32.396 it's not only the linguistic proficiency of the provider, 1134 00:55:32.817 --> 00:55:35.917 but there's something about how you speak, 1135 00:55:35.917 --> 00:55:39.457 how you relate, how you, all the non-verbal. 1136 00:55:39.457 --> 00:55:41.377 That might be very important. 1137 00:55:41.377 --> 00:55:43.777 For some reason, don't ask me why, 1138 00:55:43.777 --> 00:55:46.537 it's not as important with Latinos, 1139 00:55:46.537 --> 00:55:48.857 at least the evidence that has come out. 1140 00:55:48.857 --> 00:55:51.877 And some people think it has to do with, 1141 00:55:51.877 --> 00:55:53.657 Latinos are one of the groups that have 1142 00:55:53.657 --> 00:55:58.657 higher inter-racial marriages, so it might be 1143 00:55:59.337 --> 00:56:03.377 that they're for some reason more open, 1144 00:56:03.377 --> 00:56:05.317 I don't know, we really don't know. 1145 00:56:05.317 --> 00:56:06.637 But it's a really good question. 1146 00:56:06.637 --> 00:56:08.817 Just to tell you, we did in this study 1147 00:56:08.817 --> 00:56:11.397 that I talked to you about communication, 1148 00:56:11.397 --> 00:56:14.617 look at providers that spoke Spanish 1149 00:56:14.617 --> 00:56:19.417 with Latino patients, their communication was different. 1150 00:56:19.417 --> 00:56:21.897 So although they spoke the language, 1151 00:56:21.897 --> 00:56:24.287 still their communication was different. 1152 00:56:24.497 --> 00:56:25.817 Yes. 1153 00:56:25.817 --> 00:56:28.667 (inaudible question) 1154 00:56:33.017 --> 00:56:34.907 Care. 1155 00:56:52.878 --> 00:56:54.638 So, I think it's going to be interesting, 1156 00:56:54.638 --> 00:56:56.078 it's still ongoing. 1157 00:56:56.078 --> 00:56:58.278 We did publish recently a paper 1158 00:56:58.278 --> 00:57:01.778 in Psychiatric Services actually on that. 1159 00:57:01.778 --> 00:57:05.838 So it's having a big impact on screening on Latinos, 1160 00:57:05.838 --> 00:57:08.198 but not on the other groups. 1161 00:57:08.198 --> 00:57:10.898 One, except Brazilians by the way. 1162 00:57:10.898 --> 00:57:14.858 So it's , well, including Brazilians in the Latino group. 1163 00:57:14.858 --> 00:57:18.078 It's not having an impact screening yet 1164 00:57:18.078 --> 00:57:21.078 on Asians that we're seeing, or in 1165 00:57:21.078 --> 00:57:22.698 African Americans. 1166 00:57:22.698 --> 00:57:26.698 Two, it's only on screening, so we're not seeing 1167 00:57:26.698 --> 00:57:29.078 the effect in quality. 1168 00:57:29.078 --> 00:57:30.878 So I think it's going to be really interesting 1169 00:57:30.878 --> 00:57:33.058 seeing whether that also translates 1170 00:57:33.058 --> 00:57:35.078 to quality care. 1171 00:57:35.078 --> 00:57:36.778 So I think we have to be, I mean 1172 00:57:36.778 --> 00:57:38.558 I know everyone's very excited 1173 00:57:38.558 --> 00:57:42.018 about integrated care, and I have to say, 1174 00:57:42.018 --> 00:57:44.258 I'm very skeptical. 1175 00:57:44.258 --> 00:57:46.418 Partly because I'm worried about 1176 00:57:46.418 --> 00:57:51.418 having enough time for the behavior health component. 1177 00:57:53.538 --> 00:57:55.328 So we'll see what happens. 1178 00:57:55.738 --> 00:57:56.998 Yes. 1179 00:57:56.998 --> 00:58:00.488 (inaudible question) 1180 00:58:15.339 --> 00:58:19.839 Yeah, I actually review for Katie Willging, who was 1181 00:58:19.839 --> 00:58:22.699 the one who was doing the evaluation. 1182 00:58:22.699 --> 00:58:25.179 I think you have to be careful. 1183 00:58:25.179 --> 00:58:28.379 I don't have an opinion yet, because the data 1184 00:58:28.379 --> 00:58:32.439 that I saw was actually at the very beginning. 1185 00:58:32.439 --> 00:58:35.679 I think there is a lot to be learned 1186 00:58:35.679 --> 00:58:39.499 from shamans and from people that are doing, 1187 00:58:39.499 --> 00:58:43.499 like, if you look at astrologers 1188 00:58:43.499 --> 00:58:45.459 and things like that, why do we 1189 00:58:45.459 --> 00:58:47.559 invest so much money in them? 1190 00:58:47.559 --> 00:58:48.899 I mean it's a big question. 1191 00:58:48.899 --> 00:58:52.199 So actually, when I've gone to several conferences 1192 00:58:52.199 --> 00:58:54.359 relating to that, because I was very interested. 1193 00:58:54.359 --> 00:58:57.339 And I mean, they go because they go 1194 00:58:57.339 --> 00:59:00.339 wherever the patient wants to go. 1195 00:59:00.339 --> 00:59:03.379 They respond to the question the patient has to go. 1196 00:59:03.379 --> 00:59:06.199 But whether they're going to be effective, 1197 00:59:06.199 --> 00:59:11.199 I don't know whether the integration of native healers 1198 00:59:13.119 --> 00:59:14.299 is going to be important. 1199 00:59:14.299 --> 00:59:16.279 I think for certain populations, 1200 00:59:16.279 --> 00:59:18.459 it has turned out to be very important. 1201 00:59:18.459 --> 00:59:20.799 So for children's asthma, there's 1202 00:59:20.799 --> 00:59:23.339 a very good work that Glorisa Canino did 1203 00:59:23.339 --> 00:59:26.259 on children's asthma, and integrating healers 1204 00:59:26.259 --> 00:59:27.740 in asthma care. 1205 00:59:27.740 --> 00:59:30.179 And it actually helped to talk, 1206 00:59:30.179 --> 00:59:32.320 because the person felt more open 1207 00:59:32.320 --> 00:59:34.959 to disclosing what they were getting 1208 00:59:34.959 --> 00:59:36.699 from the healers, and sometimes 1209 00:59:36.699 --> 00:59:38.500 there was something that was going to be 1210 00:59:38.500 --> 00:59:40.180 very problematic. 1211 00:59:40.180 --> 00:59:41.520 Or was going to be substituted 1212 00:59:41.520 --> 00:59:43.119 for the actual medication. 1213 00:59:43.119 --> 00:59:45.860 So I think there are components that are important. 1214 00:59:45.860 --> 00:59:48.320 But I think we have to, all of the same, 1215 00:59:48.320 --> 00:59:51.649 I'm a big believer in evaluating. 1216 00:59:52.220 --> 00:59:53.369 Yes. 1217 00:59:53.419 --> 00:59:57.170 (inaudible question) 1218 01:00:10.839 --> 01:00:12.250 That... 1219 01:00:16.160 --> 01:00:18.060 Can I answer your first one? 1220 01:00:18.060 --> 01:00:21.700 Let me just, you know, to make sure I answer it. 1221 01:00:21.700 --> 01:00:24.620 So, we, the reason we didn't follow them 1222 01:00:24.620 --> 01:00:27.060 longitudinal, is this was one of the things, 1223 01:00:27.060 --> 01:00:28.580 I don't know if people heard about it, 1224 01:00:28.580 --> 01:00:31.500 what was it called challenge grants? 1225 01:00:31.500 --> 01:00:33.440 So the government had some money, 1226 01:00:33.440 --> 01:00:35.180 and put out there, well we have, 1227 01:00:35.180 --> 01:00:38.760 write your thing, actually it's really interesting, 1228 01:00:38.760 --> 01:00:41.860 because this challenge grant was only for two years. 1229 01:00:41.860 --> 01:00:44.100 Actually then, we had a known-cost extension 1230 01:00:44.100 --> 01:00:45.899 and took it to three years. 1231 01:00:45.899 --> 01:00:48.730 But we couldn't follow people for enough time. 1232 01:00:49.320 --> 01:00:51.560 We're now doing the study with the elders 1233 01:00:51.560 --> 01:00:54.820 using the same type of intervention, 1234 01:00:54.820 --> 01:00:56.220 a little more expanded because 1235 01:00:56.220 --> 01:00:57.720 we're including other things. 1236 01:00:57.720 --> 01:01:01.580 But we'll have a chance to follow people for 12 months. 1237 01:01:01.580 --> 01:01:04.780 We're actually doing a study on mental health 1238 01:01:04.780 --> 01:01:07.780 substance abuse for people that have dual pathology 1239 01:01:07.780 --> 01:01:10.040 and those we'll follow for a year. 1240 01:01:10.040 --> 01:01:12.070 So we'll have more information. 1241 01:01:12.780 --> 01:01:16.410 (inaudible question) 1242 01:01:41.541 --> 01:01:44.341 I really am so glad you asked that question. 1243 01:01:44.341 --> 01:01:46.401 Because I can tell you the first thing 1244 01:01:46.401 --> 01:01:50.441 clinician told us is the phone won't work. 1245 01:01:50.441 --> 01:01:51.981 Because we won't be able to have 1246 01:01:51.981 --> 01:01:55.591 the same therapeutic alliance as we have in person. 1247 01:01:55.821 --> 01:01:57.701 We actually tested that and found 1248 01:01:57.701 --> 01:02:00.251 that that's not true. 1249 01:02:00.281 --> 01:02:02.061 I think it has, the reason we actually 1250 01:02:02.061 --> 01:02:05.641 describe that in the paper, is we think 1251 01:02:05.641 --> 01:02:09.181 so many of these immigrant populations 1252 01:02:09.181 --> 01:02:12.581 maintain a connection through the phone. 1253 01:02:12.581 --> 01:02:15.021 That they are used to having this 1254 01:02:15.021 --> 01:02:17.221 connection by phone, and in fact, 1255 01:02:17.221 --> 01:02:19.401 what we found in certain cases 1256 01:02:19.401 --> 01:02:21.821 where the provider, this we didn't allow 1257 01:02:21.821 --> 01:02:25.541 if you were in the telephone arm, 1258 01:02:25.541 --> 01:02:27.321 and by the way, clinicians had to be 1259 01:02:27.321 --> 01:02:28.621 in both arms. 1260 01:02:28.621 --> 01:02:30.241 So it was not an effect of clinician 1261 01:02:30.241 --> 01:02:32.001 being one arm and not the other, 1262 01:02:32.001 --> 01:02:33.441 so you have to be in both arms. 1263 01:02:33.441 --> 01:02:36.061 But anyhow, what we found is that 1264 01:02:36.061 --> 01:02:38.781 the therapeutic alliance, there was 1265 01:02:38.781 --> 01:02:41.221 no significant difference across the two groups. 1266 01:02:41.221 --> 01:02:43.211 And we measure that. 1267 01:02:44.921 --> 01:02:46.301 Questions, yes? 1268 01:02:46.301 --> 01:02:50.511 (inaudible question) 1269 01:03:09.202 --> 01:03:11.782 Yeah, so let me tell you, in clinical care 1270 01:03:11.782 --> 01:03:15.102 it's more difficult, because, I mean, 1271 01:03:15.102 --> 01:03:17.562 and this is where cultural humility comes in. 1272 01:03:17.562 --> 01:03:19.982 You might say to the person, I have no clue 1273 01:03:19.982 --> 01:03:22.622 what is this word that you're using. 1274 01:03:22.622 --> 01:03:24.962 Or trying to find out someone that can 1275 01:03:24.962 --> 01:03:26.602 help you with a wording. 1276 01:03:26.602 --> 01:03:29.782 So one of the things, just for the clinical care 1277 01:03:29.782 --> 01:03:31.902 what we did is, we actually have 1278 01:03:31.902 --> 01:03:34.702 a bilingual committee that is made of 1279 01:03:34.702 --> 01:03:38.462 people from many, many, like Spanish-speaking countries 1280 01:03:38.462 --> 01:03:40.242 when we were doing Spanish, so it was 1281 01:03:40.242 --> 01:03:42.842 not only like, Puerto Rican Spanish 1282 01:03:42.842 --> 01:03:45.322 or Salvadoran Spanish or whatever. 1283 01:03:45.322 --> 01:03:47.462 And what we do is we put like, 1284 01:03:47.462 --> 01:03:50.462 all these words, slash, slash, slash, slash. 1285 01:03:50.462 --> 01:03:53.922 So the person can look when they are doing, 1286 01:03:53.922 --> 01:03:55.302 like which of the words are they 1287 01:03:55.302 --> 01:03:57.642 you know, it's going to be this person 1288 01:03:57.642 --> 01:04:00.162 is from Argentina, well I can start 1289 01:04:00.162 --> 01:04:02.562 doing different words. 1290 01:04:02.562 --> 01:04:05.442 We also, I mean, for questionnaires, 1291 01:04:05.442 --> 01:04:07.982 when we do questionnaires, we actually 1292 01:04:07.982 --> 01:04:11.022 allow what they call throttling. 1293 01:04:11.022 --> 01:04:13.122 So you can go back and forth, and 1294 01:04:13.122 --> 01:04:15.902 the same, it will show you many, many words. 1295 01:04:15.902 --> 01:04:17.962 And that's how we try to compensate 1296 01:04:17.962 --> 01:04:20.882 for, because there's not one Spanish, 1297 01:04:20.882 --> 01:04:22.962 and there's not one Chinese, and there's 1298 01:04:22.962 --> 01:04:25.223 not one Creole. 1299 01:04:25.223 --> 01:04:26.663 I mean if you think about it, there are 1300 01:04:26.663 --> 01:04:30.083 many iterations depending from where you come. 1301 01:04:30.083 --> 01:04:32.143 So I think that that's where we train 1302 01:04:32.143 --> 01:04:35.043 our clinicians about cultural humility. 1303 01:04:35.043 --> 01:04:37.083 Because it's not only language. 1304 01:04:37.083 --> 01:04:38.703 I mean, we have everything from 1305 01:04:38.703 --> 01:04:41.703 sexual orientation to people, how they 1306 01:04:41.703 --> 01:04:45.703 dress, how they react, and so we really think 1307 01:04:45.703 --> 01:04:47.843 it's important for you to make a connection 1308 01:04:47.843 --> 01:04:50.403 and we do a lot of things to try to create 1309 01:04:50.403 --> 01:04:52.313 that environment. 1310 01:04:54.063 --> 01:04:55.363 Yes. 1311 01:04:55.363 --> 01:04:58.633 (inaudible question) 1312 01:05:05.144 --> 01:05:06.994 Sure. 1313 01:05:08.044 --> 01:05:11.124 Well, I mean, I think you know, 1314 01:05:11.124 --> 01:05:12.964 I have to say there are limits 1315 01:05:12.964 --> 01:05:16.304 to what data can do. 1316 01:05:16.304 --> 01:05:19.764 That's actually one of the reasons 1317 01:05:19.764 --> 01:05:22.064 my last grant, the last grant 1318 01:05:22.064 --> 01:05:24.784 I have submitted was more, not only 1319 01:05:24.784 --> 01:05:27.904 bringing the data, but actually 1320 01:05:27.904 --> 01:05:30.784 working with community groups, 1321 01:05:30.784 --> 01:05:35.484 stake holders, policy makers, to try to 1322 01:05:35.484 --> 01:05:37.804 help them generate the intervention 1323 01:05:37.804 --> 01:05:39.244 that they wanted. 1324 01:05:39.244 --> 01:05:42.384 Because I actually found that although 1325 01:05:42.384 --> 01:05:44.124 you might bring, like for example, 1326 01:05:44.124 --> 01:05:45.184 let me give you the example of 1327 01:05:45.184 --> 01:05:47.224 patient-provider communication. 1328 01:05:47.224 --> 01:05:50.584 I mean, everyone agrees that we do 1329 01:05:50.584 --> 01:05:52.664 biases, stereotypes, everyone, 1330 01:05:52.664 --> 01:05:54.564 I mean, there's no question. 1331 01:05:54.564 --> 01:05:57.564 People agree less on whether they're doing it. 1332 01:05:57.564 --> 01:05:59.844 That's obviously. 1333 01:05:59.844 --> 01:06:02.724 But I would say that you know, 1334 01:06:02.724 --> 01:06:06.105 they're willing to even take that on. 1335 01:06:06.105 --> 01:06:08.805 But it's something very different when you tell them 1336 01:06:08.805 --> 01:06:11.725 like the coaching, we do a 12-hour coaching. 1337 01:06:11.725 --> 01:06:14.645 And what we find is that the coaching helps, 1338 01:06:14.645 --> 01:06:16.965 because it creates awareness, and it also 1339 01:06:16.965 --> 01:06:19.465 will help in why we're focusing on 1340 01:06:19.465 --> 01:06:21.545 these components of our training. 1341 01:06:21.545 --> 01:06:24.625 But actually, it's not that effective. 1342 01:06:24.625 --> 01:06:26.285 I think what's really effective 1343 01:06:26.285 --> 01:06:29.485 is telling you what you are doing 1344 01:06:29.485 --> 01:06:33.665 that doesn't work that might be changed 1345 01:06:33.665 --> 01:06:37.265 and might get you along with your patient. 1346 01:06:37.265 --> 01:06:39.365 And that really triggers something 1347 01:06:39.365 --> 01:06:42.085 different in people, because it's not like, 1348 01:06:42.085 --> 01:06:44.785 everyone does biases, and everyone 1349 01:06:44.785 --> 01:06:47.885 does stereotypes, it's, you're doing this. 1350 01:06:47.885 --> 01:06:50.245 And this is attributional error. 1351 01:06:50.245 --> 01:06:52.165 And when you do an attributional error, 1352 01:06:52.165 --> 01:06:54.425 you distance yourself from the patient. 1353 01:06:54.425 --> 01:06:55.865 So this is what you could do. 1354 01:06:55.865 --> 01:06:58.765 You could do x and y and it's very different. 1355 01:06:58.765 --> 01:07:00.665 It's a very different component. 1356 01:07:00.665 --> 01:07:03.965 I think the same happens for policy makers. 1357 01:07:03.965 --> 01:07:06.925 We can give them all the data we want, 1358 01:07:06.925 --> 01:07:09.925 but they have to be part of the solution. 1359 01:07:09.925 --> 01:07:12.515 To make a change. 1360 01:07:14.325 --> 01:07:15.775 Other questions. 1361 01:07:18.965 --> 01:07:20.465 Yes. 1362 01:07:20.465 --> 01:07:23.675 (inaudible question) 1363 01:07:28.285 --> 01:07:29.615 Oh. 1364 01:07:40.765 --> 01:07:41.915 Sure. 1365 01:07:45.725 --> 01:07:47.165 You know, unfortunately, this was 1366 01:07:47.165 --> 01:07:50.385 a big epidemiologic study, so we know 1367 01:07:50.385 --> 01:07:53.345 that there are many things. 1368 01:07:53.345 --> 01:07:55.905 I can tell you what qualitative work, 1369 01:07:55.905 --> 01:07:57.745 which I think does a better job 1370 01:07:57.745 --> 01:08:01.365 of trying to capture why are people not coming. 1371 01:08:01.365 --> 01:08:03.705 I think there are many issues. 1372 01:08:03.705 --> 01:08:05.565 I think the biggest one is, people 1373 01:08:05.565 --> 01:08:07.525 really don't think they have a problem 1374 01:08:07.525 --> 01:08:10.923 that's so serious that they need professional care. 1375 01:08:10.923 --> 01:08:13.963 I think that's a huge, huge problem. 1376 01:08:13.963 --> 01:08:16.363 And unfortunately we know that 1377 01:08:16.363 --> 01:08:21.303 it takes 15 years, 15 years of disorder 1378 01:08:21.303 --> 01:08:23.522 for people to start going to care. 1379 01:08:23.522 --> 01:08:25.663 That's really the time lapse that it takes 1380 01:08:25.663 --> 01:08:28.054 for people to start going to care. 1381 01:08:28.464 --> 01:08:31.064 So to convince people earlier on 1382 01:08:31.064 --> 01:08:33.444 in their illness trajectory means 1383 01:08:33.444 --> 01:08:35.844 you have to be really convincing 1384 01:08:35.844 --> 01:08:38.404 about why they should do it earlier. 1385 01:08:38.404 --> 01:08:41.104 And I don't think we do a good job about that. 1386 01:08:41.104 --> 01:08:43.944 I think there is a lot that can be done 1387 01:08:43.944 --> 01:08:46.964 with motivational interviewing, 1388 01:08:46.964 --> 01:08:48.924 but I think you need other strategies 1389 01:08:48.924 --> 01:08:50.384 to convince people they should 1390 01:08:50.384 --> 01:08:52.224 go to care earlier. 1391 01:08:52.224 --> 01:08:54.724 So that's one big issue. 1392 01:08:54.724 --> 01:08:56.764 I think the second big issue is, 1393 01:08:56.764 --> 01:08:59.164 I don't think care is very accessible 1394 01:08:59.164 --> 01:09:01.824 for people that are working today. 1395 01:09:01.824 --> 01:09:04.104 I think people have a lot of issues 1396 01:09:04.104 --> 01:09:07.144 in going to care if they're working full time. 1397 01:09:07.144 --> 01:09:10.004 And so it's very difficult to maneuver that 1398 01:09:10.004 --> 01:09:13.964 unless you have a community health clinic, 1399 01:09:13.964 --> 01:09:18.604 you know, 15 minutes down your work. 1400 01:09:18.604 --> 01:09:20.664 And that's very unlikely. 1401 01:09:20.664 --> 01:09:21.864 And I can tell you because I hear 1402 01:09:21.864 --> 01:09:23.904 a lot of, when I'm doing supervision, 1403 01:09:23.904 --> 01:09:26.204 I hear a lot of tapes. 1404 01:09:26.204 --> 01:09:27.504 And you can see people saying, 1405 01:09:27.504 --> 01:09:29.644 I can't come that frequently, no, 1406 01:09:29.644 --> 01:09:31.584 you know, I can come in two months. 1407 01:09:31.584 --> 01:09:32.804 Well in two months you don't even 1408 01:09:32.804 --> 01:09:34.544 remember who's this person. 1409 01:09:34.544 --> 01:09:36.504 I mean, their problem is probably 1410 01:09:36.504 --> 01:09:38.544 a lot more severe. 1411 01:09:38.544 --> 01:09:40.444 So I think thinking about how we can 1412 01:09:40.444 --> 01:09:42.604 provide care and work in ways that 1413 01:09:42.604 --> 01:09:45.344 don't require people to come all the time, 1414 01:09:45.344 --> 01:09:47.184 I think is critical. 1415 01:09:47.184 --> 01:09:49.304 I think the third thing that we, 1416 01:09:49.304 --> 01:09:51.264 I have to say, I don't think we're 1417 01:09:51.264 --> 01:09:54.104 providing that great care, I think 1418 01:09:54.104 --> 01:09:56.944 we're doing a lot of venting out 1419 01:09:56.944 --> 01:09:59.544 and hearing people vent out, but not 1420 01:09:59.544 --> 01:10:02.504 necessarily helping people gain 1421 01:10:02.504 --> 01:10:04.404 greater insight. 1422 01:10:04.404 --> 01:10:06.764 And doing more illness management. 1423 01:10:06.764 --> 01:10:07.964 And part of that is because it's 1424 01:10:07.964 --> 01:10:10.664 very labor-intensive to do that. 1425 01:10:10.664 --> 01:10:13.524 But I think we need better training. 1426 01:10:13.524 --> 01:10:17.504 So I think those three things are drivers 1427 01:10:17.504 --> 01:10:20.664 of why we're not getting good care. 1428 01:10:20.664 --> 01:10:22.414 And people to go to care. 1429 01:10:23.224 --> 01:10:24.824 Thank you very much. 1430 01:10:24.824 --> 01:10:25.764 Really appreciate it. 1431 01:10:25.764 --> 01:10:28.474 (applause)